San FRancisco In-Person Me
March 23, 2025: In-Person Meet & Greet in Roseville, CA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event on Sunday, March 23, from 3:30 to 5:30 p.m PT. Hosted by AFTD volunteer and caregiver Ed Fargusson and AFTD Ambassador Terry Walter, this event will take place at the Seventh Day Adventist Conference Center at 2100…
Read MoreRoseville, CA In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD volunteer and caregiver Ed Fargusson and AFTD Ambassador Terry Walter. RSVP for this event by contacting Terry by email (twalter@theaftd.org) or phone (916-761-7180). We encourage you to download this flyer and share it with…
Read MoreStatement from The Association for Frontotemporal Degeneration (AFTD) on Disruption of Scientific Research Funding and Activities
The Association for Frontotemporal Degeneration (AFTD) is deeply concerned about recent policy changes and layoffs at the National Institutes of Health (NIH) that greatly disrupt biomedical research of high importance to the families we serve. FTD is the most common dementia diagnosed in people under 60 years and currently has no effective treatment. Many families…
Read MoreGuest Feature: The Story Behind the Story – Our Journey Through FTD and Why I Wrote “Welcome to the Honey B & B”
Novelist Melody Carlson drew from her family’s FTD story to write her latest book, Welcome to the Honey B & B, which will be released on March 4 by Baker Publishing Group. In the following article, she describes her late husband’s road to getting an FTD diagnosis and explains why she built a novel around…
Read MoreAFTD Webinar: At the Intersection of FTD and the Law
FTD can present with executive dysfunction, impulsivity, loss of empathy, apathy, and disinhibition. At times, these symptoms can lead to interactions with police, whether responding to an incident at home or in the community resulting in an arrest. This webinar highlights what we know about the incidence of these interactions, discusses what FTD symptoms are…
Read MoreAFTD Webinar: AFTD and You — Partners in Drug Development
How does a great scientific idea become an effective treatment? It’s a long and complicated process! Drug development involves many key players, including researchers, companies, regulators, funders, patient advocacy organizations like AFTD and, importantly, community members with lived experience of FTD. The field of FTD has made exciting progress in the past decade, with treatments…
Read MorePassage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN
Biotechnology company Passage Bio released interim data for its upliFT-D clinical trial for its gene replacement therapy for FTD-GRN and announced that it is on track to expand the trial to FTD-c9orf72. Data Shows PBFT02 Increases Progranulin Long-Term In FTD caused by an inherited GRN genetic mutation, production of the neuroprotective protein progranulin is suppressed,…
Read MoreBonnie Brae Classic
Tee up for a day of golf, camaraderie, and fun at the Bonnie Brae Classic with Zach Fenoglio and friends at Red Hawk Ridge Golf Club in Castle Rock, CO! The event kicks off with an 8:00 AM shotgun start, followed by lunch, a silent auction, and a raffle. Don’t miss the creative costumes that…
Read MoreAdvocacy Update: Protect FTD Research Today!
Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your advocacy to protect it. Earlier this month, the National Institutes of Health announced that it will drastically change how its grants are funded. This abrupt reduction will slow progress in research focused on FTD and other diseases, as…
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