Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
Read MoreAFTD Webinar: FTD and ALS — A Collaborative Approach to Diagnosis and Care
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions can appear without a known genetic cause. In this AFTD Healthcare Professional Webinar, neurologists from Massachusetts General Hospital who specialize in FTD and ALS discuss…
Read MoreAdvancing Hope: AFTD-ADDF Partnership Announces New Award in Drug Discovery Program
AFTD has partnered with the Alzheimer’s Drug Discovery Foundation (ADDF) since 2007 to support preclinical research on promising new drugs through the Accelerating Drug Discovery for FTD program. We are proud to announce Jeffrey Rothstein, MD, PhD, a professor of neurology and director of the Robert Packard Center for ALS Research at Johns Hopkins University,…
Read MoreViewpoints of FTD – Brain Donation
While there is currently no cure or approved treatments for FTD, increasing numbers of diagnostic tools and experimental treatments are entering the clinical trial phase of their development. A major contributor to this progress is the growing number of people diagnosed with FTD participating in research, including through brain donation. Not only does a donation…
Read MoreBringing Hope & Light to the Dementia Journey
AFTD volunteer Joni Ralph is hosting an event table at Bringing Hope & Light to the Dementia Journey at UW Stevens Point on August 6, 2024. The full day education conference provides insights for care partners, professionals, and people living with FTD and other dementias.
Read MoreAFTD Volunteer Receives “Visionary of the Year 2024” Award for 40 Years of Advocacy
AFTD volunteer Wanda Smith received Alzheimer’s San Diego’s Visionary of the Year 2024 award for her FTD advocacy and awareness-raising efforts, which date back to the 1980s. Smith’s journey began when her mother, Sara Bridges, started to experience difficulties at work. Suspecting Alzheimer’s, Smith turned to Dr. Robert Katzman, MD, of the nearby University of…
Read More
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)