Celebrating 20 Years of AFTD’s Pilot Grant Program
Over the past 20 years, AFTD’s Pilot Grant program, which supports early-career researchers or new ideas, has funded $2.8 million in innovative FTD research. In 2005, AFTD founder Helen-Ann Comstock and a small group of medical advisors awarded $35,000 to Eileen Bigio, MD, a clinical researcher at Northwestern University, to identify abnormal proteins present in…
Read MoreCelebrating 20 Years of AFTD’s Pilot Grant Program
Over the past 20 years, AFTD’s Pilot Grant program, which supports early-career researchers or new ideas, has funded $2.8 million in innovative FTD research. In 2005, AFTD founder Helen-Ann Comstock and a small group of medical advisors awarded $35,000 to Eileen Bigio, MD, a clinical researcher at Northwestern University, to identify abnormal proteins present in…
Read MoreAdvancing Hope: FTD and ALS Joint Initiatives
Did you know that certain cellular changes that occur in FTD are also observed in Amyotrophic Lateral Sclerosis (ALS)? In some cases, neurodegeneration in ALS and FTD is linked to aggregation and impairment of a protein known as TDP-43. Furthermore, there are genetic mutations linked to onset of one or both diseases. With these and…
Read MoreThe Lived Experience of FTD: Managing Anxiety
The following article was written by Chris Tann, a member of AFTD’s Persons With FTD Advisory Council. You can learn more about Chris and the other members of the Council on AFTD’s website. Anxiety is something that people living with FTD may experience on their journey. I have not been in the company of anyone,…
Read MoreTwo Drugs Selected for Evaluation in Platform Trial for PSP
A pair of drugs has been selected for evaluation in a platform trial that aims to accelerate the development of treatments for progressive supranuclear palsy (PSP). The trial is being conducted by researchers at the University of California, San Francisco; the University of California, San Diego; and Massachusetts General Hospital. Drugs for Other Tauopathies Might…
Read MoreDear HelpLine: Hospice Care and FTD
Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us we should consider moving her to hospice. What does hospice care involve? How has the experience gone for others? Hospice offers holistic care that focuses on maximizing the quality of one’s remaining life by addressing physical symptoms and…
Read MoreStudy Evaluates PET Tracer and Explores How PSP Damages Brain Synapses
A study published in the journal Alzheimer’s & Dementia evaluates the potential utility of a novel PET tracer for progressive supranuclear palsy (PSP) while also exploring how the disorder damages synapses. The Mechanisms of Synaptic Loss in PSP are Unknown Synapses are the junctions that connect neurons, transmitting electrical or chemical signals to assist with…
Read MoreFormer Judge Gains Artistic Ability after PPA Diagnosis
A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis of primary progressive aphasia, KCRA in Sacramento reported earlier this year. Two years ago, Dylan Sullivan would never have called herself an artist. As a judge in El Dorado, Calif. Superior Court, her world was the law, her…
Read More2025 Colfax Marathon
The AFTD-Team will participate in the Colfax Marathon on May 17-18, as an Official Charity Partner. We hope you’ll join us for a weekend of connection and awareness. Race distances include: Marathon (26.2 miles); Half Marathon (13.1 miles); Urban 10-Miler; 5K (3.1 miles); and Marathon Relay (26.2 miles across five individual legs). Click here to…
Read MoreBRI Care Consultation Learning Collaborative – Understanding FTD: Diagnosis, Support and Resources for Patients and Caregivers
Join AFTD Director of Support and Education Esther Kane, MSN, RN-CDP for a free informative session highlighting the signs and symptoms of FTD, how it is diagnosed, and what resources are available for families on the FTD journey, presented by the Benjamin Rose Institute on Aging. A Q&A session will be held to allow attendees…
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