Two Drugs Selected for Evaluation in Platform Trial for PSP
A pair of drugs has been selected for evaluation in a platform trial that aims to accelerate the development of treatments for progressive supranuclear palsy (PSP). The trial is being conducted by researchers at the University of California, San Francisco; the University of California, San Diego; and Massachusetts General Hospital. Drugs for Other Tauopathies Might…
Read MoreDear HelpLine: Hospice Care and FTD
Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us we should consider moving her to hospice. What does hospice care involve? How has the experience gone for others? Hospice offers holistic care that focuses on maximizing the quality of one’s remaining life by addressing physical symptoms and…
Read MoreStudy Evaluates PET Tracer and Explores How PSP Damages Brain Synapses
A study published in the journal Alzheimer’s & Dementia evaluates the potential utility of a novel PET tracer for progressive supranuclear palsy (PSP) while also exploring how the disorder damages synapses. The Mechanisms of Synaptic Loss in PSP are Unknown Synapses are the junctions that connect neurons, transmitting electrical or chemical signals to assist with…
Read MoreFormer Judge Gains Artistic Ability after PPA Diagnosis
A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis of primary progressive aphasia, KCRA in Sacramento reported earlier this year. Two years ago, Dylan Sullivan would never have called herself an artist. As a judge in El Dorado, Calif. Superior Court, her world was the law, her…
Read More2025 Colfax Marathon
The AFTD-Team will participate in the Colfax Marathon on May 17-18, as an Official Charity Partner. We hope you’ll join us for a weekend of connection and awareness. Race distances include: Marathon (26.2 miles); Half Marathon (13.1 miles); Urban 10-Miler; 5K (3.1 miles); and Marathon Relay (26.2 miles across five individual legs). Click here to…
Read MoreBRI Care Consultation Learning Collaborative – Understanding FTD: Diagnosis, Support and Resources for Patients and Caregivers
Join AFTD Director of Support and Education Esther Kane, MSN, RN-CDP for a free informative session highlighting the signs and symptoms of FTD, how it is diagnosed, and what resources are available for families on the FTD journey, presented by the Benjamin Rose Institute on Aging. A Q&A session will be held to allow attendees…
Read MoreVolunteer Update: Thank You to Our Volunteers!
To all those who dedicate their time and energy with AFTD to making a difference within the FTD community, we thank you! Every hour you invest and every task you undertake plays a vital role in bringing us closer to the day we have effective treatments, and finally a cure, for FTD. Thank you to…
Read MoreAdvancing Hope: AFTD Attends 2025 American Academy of Neurology (AAN) Meeting
Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier this month in San Diego. This meeting typically attracts around 14,000 international attendees, including many clinical neurologists. While in San Diego, AFTD and Registry staff worked to spread awareness about FTD and iconnect with others who can help…
Read MoreAFTD’s 2025 Driving Hope Golf Tournament (CO)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on August 10th at the Colorado National Golf Club in Erie, CO! Tickets are available for single golfers, foursomes, and dinner/drinks only guests. There are also multiple sponsorship opportunities…
Read MoreAFTD’s 2025 Driving Hope Golf Tournament (NY)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on September 29th at the Metropolis Golf Club in White Plains, NY! Tickets are available for single golfers, foursomes, and reception only guests.…
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