The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

cape cod times columnist writes about husband with FTD image

Cape Cod Times Columnist Shares Stories of Life with Her Husband with FTD

Columnist Saralee Perel shared stories from her “wacky and wistful” life with her husband with FTD in a recent article published in the Cape Cod Times. Perel opens the column…

Advancing Hope: What is Familial FTD?

When a relative is diagnosed with FTD, the AFTD HelpLine is often asked, “Could I also develop FTD?” What they are really asking is – is my loved one’s FTD…

pre diagnostic cognitive impairment image

British Study Finds Evidence for Pre-Diagnostic Cognitive Impairment in People with Neurodegenerative Diseases

A study published in the Alzheimer’s & Dementia medical journal found evidence of cognitive impairment in people diagnosed with a neurodegenerative disease like FTD years before an official diagnosis is…

the lived experience of brain donation cindy odell image

The Lived Experience: Brain Donation

By Cindy Odell I was diagnosed with bvFTD more than ten years ago. My immediate reaction was one of shock even after considering that two of my relatives were currently…

Guest Feature: “Until We Knew, Twice: Life With MND/ALS and FTD” Shares a Story of Love and Grief on the FTD Journey

The FTD journey can be an isolating experience; it can often feel like nobody knows what you are going through. For Swedish author Elisabet O. Klint, whose late husband Mats…

Perspectives in FTD Research Webinar: Brain Donations — Who, What, Where, When, and Why?

In this Perspectives in Research Webinar, presented jointly by AFTD and the FTD Disorders Registry, Dr. David Irwin and Dr. Lauren Massimo of the University of Pennsylvania join other experts…

March athlete of the month lynne lewis image

March’s Athlete of the Month: Lynne Lewis

Our Charity Miles Athlete of the Month for March is Lynne Lewis from Pennsylvania. Lynne uses the Charity Miles app in memory of her husband, Glenn. He was an avid…

Advocacy Update: AFTD Ambassador Corey Esannason Meets with Staff from State Senator Andrea Stewart-Cousins’ Office

On March 3 AFTD Ambassador Corey Esannason met with staff from New York State Senator Andrea Stewart-Cousins’ office. Corey was inspired to arrange the visit after attending the New York Alzheimer’s…

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