The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Financial Mishaps as a Sign of Dementia image

NPR Report Examines Financial Mishaps as a Sign of Dementia

A report published earlier this year by NPR explores how how financial mishaps can often be an early sign of dementia. The report introduces Angela Reynolds, who first took notice…

Volunteer Update: From AFTD to Our Volunteers – Thank You for All That You Do!

It’s National Volunteer Appreciation Week, the time of year when we extend our gratitude to all AFTD volunteers. It is our volunteers, at all levels, who help advance our mission…

Advancing Hope: Opportunities for No-Cost Genetic Testing

There are many reasons people may consider genetic testing. Testing can help determine your eligibility for clinical trials of experimental medicines that address the genetic causes of FTD. It can…

NEW YORK, NEW YORK - MARCH 14: Julie D. Kelly attends AFTD's 2023 Hope Rising Benefit at The Ziegfeld Ballroom on March 14, 2023 in New York City. (Photo by Sean Zanni/Getty Images for AFTD)

Spotlight on… Julie Kelly, AFTD Board of Directors

Growing up, Julie Kelly was like a third sister to her best friends, identical twins Cathy Pfeifer and Jeannette Ekstrand. The trio went to high school together in suburban Chicago.…

Healing Through Sharing Our FTD Story

“We have to stop and remember that the person they were is not the person they are, and it’s going to keep changing. I hope we can get people to…

AFTD News: Spring 2023, Vol. 20, Issue 1

In this issue: Bruce Willis Announcement Brings FTD Awareness to Millions Worldwide; L.A. Rams Coach Dons AFTD Cleats During Game; Penny Dacks Appears on Remember Me Podcast; Healing Through Sharing…

april athlete of the month chad thomsen image

April’s Athlete of the Month: Chad Thomsen

Our April Charity Miles Athlete of the Month is Chad Thomsen from North Carolina. He runs in memory of his first wife, Roxanne, who passed away in 2009 at 41…

treatment of behavioral variant frontotemporal degeneration image

AFTD Webinar: Treatment of Behavioral Variant Frontotemporal Degeneration

Join Dr. Simon Ducharme, a neuropsychiatrist, researcher, and expert specializing in FTD, as he presents on the treatment of behavioral variant FTD (bvFTD). This webinar is designed specifically for primary…

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