AFTD Ambassador Honors Daughter by Spreading FTD Awareness: “FTD Didn’t Win in the End”
In a recent interview with WTHI AFTD Ambassador Dawn Kirby recently shared her daughter’s FTD journey with WTHI-TV in Terre Haute, Ind., explaining how she turned her family’s pain into purpose by spreading awareness of the disease. While FTD is the most common dementia in people under 60, Kirby’s daughter Kara began to experience symptoms…
Read MorePowered by Connections Older Adult Month Resource Fair
AFTD Volunteer Ric Fischer will be hosting an information table at the Powered by Connections Older Adult Month Resource Fair in Fairfax, Va. on May 22. This a free event for the community to gather resources and hear panel discussions and speakers honoring older Americans. Registration is required. Click here to learn more and to…
Read MoreAlzheimer’s Association 38th Annual Wisconsin Conference
Volunteer Alice Brecheisen will be at the Alzheimer’s Association 38th Annual Wisconsin Conference on May 5-6 with an info table about FTD. The Annual Wisconsin Conference is a comprehensive event on dementias like FTD and Alzheimer’s disease that attracts hundreds of healthcare professionals. Continuing Education Credits are available for attendees through University of Wisconsin – Stevens…
Read More19th Annual George F. Sidoris Memorial Golf Outing
The 19th Annual George F. Sidoris Memorial Golf Outing will be held on July 20, 2024 at the Lost Nation Golf Course in Willoughby, Ohio. The event will feature a shotgun start, four person scramble format, closest to the pin and most accurate drive contests, door prizes, a raffle and steak dinner. All proceeds to…
Read MoreBalancing Safety and Autonomy When Persons Diagnosed Leave the Home
In recent days, national media outlets have reported on the disappearance of Edmond Bradley Solomon III, a 66-year-old South Carolina man living with an FTD diagnosis, in Mexico. Mr. Solomon was on a cruise with his wife when he disappeared on April 3, shortly after their ship docked for the day in Cozumel, one of…
Read MoreAFTD Advocacy Training for NY FTD Registry
Join AFTD’s advocacy team for training to prepare New York residents to advocate for the passage of state Senate Bill S7874, sponsored by Michelle Hinchey. If passed, the bill would create a registry documenting all FTD diagnoses in the state, providing crucial data to researchers. The training will be hosted on Zoom, interested participants are…
Read MoreRoaming in FTD Has an Underlying Reason, Report Says
A news report by Spectrum News 1 in Ohio shows that roaming in FTD has an underlying reason and that care partners can take steps to make this behavior safer for persons diagnosed. In the report reporter Kimberly Perez speaks to Carol Jeran of Cleveland, the care partner for her husband, Jim, who was diagnosed…
Read MoreDear HelpLine: Hyperorality
Dear HelpLine, My loved one is focused on eating sweets like cookies and candy bars, which is so different than how he used to eat. I’m concerned he’s not eating a healthy diet and is gaining weight. I’ve tried keeping sweets out of the house, but then he goes to the store to get them…
Read MoreResearchers Adapt Digital Intervention for Dementia Care Partners for FTD, Other Dementias
In a study published in the International Journal of Environmental Health and Research, researchers at Bangor University in Wales and University College London adapted a digital training resource for dementia care partners to reflect the specific needs and preferences of carers of persons with rare dementias such as FTD. The iSupport for Dementia program was…
Read MoreRecent Study Highlights Reliability and Validity of ALLFTD Mobile App for Diagnosis and Research
A study recently published in the journal JAMA Network Open highlights the reliability and validity of a digital assessment tool, the ALLFTD Mobile App (ALLFTD-mApp) for the remote diagnosis of FTD. Developed in partnership with Datacubed Health, the ALLFTD-mApp allows clinicians to measure cognitive function in a person’s own home using a smartphone, rather than…
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