Balancing Safety and Autonomy When Persons Diagnosed Leave the Home
In recent days, national media outlets have reported on the disappearance of Edmond Bradley Solomon III, a 66-year-old South Carolina man living with an FTD diagnosis, in Mexico. Mr. Solomon was on a cruise with his wife when he disappeared on April 3, shortly after their ship docked for the day in Cozumel, one of…
Read MoreAFTD Advocacy Training for NY FTD Registry
Join AFTD’s advocacy team for training to prepare New York residents to advocate for the passage of state Senate Bill S7874, sponsored by Michelle Hinchey. If passed, the bill would create a registry documenting all FTD diagnoses in the state, providing crucial data to researchers. The training will be hosted on Zoom, interested participants are…
Read MoreRoaming in FTD Has an Underlying Reason, Report Says
A news report by Spectrum News 1 in Ohio shows that roaming in FTD has an underlying reason and that care partners can take steps to make this behavior safer for persons diagnosed. In the report reporter Kimberly Perez speaks to Carol Jeran of Cleveland, the care partner for her husband, Jim, who was diagnosed…
Read MoreDear HelpLine: Hyperorality
Dear HelpLine, My loved one is focused on eating sweets like cookies and candy bars, which is so different than how he used to eat. I’m concerned he’s not eating a healthy diet and is gaining weight. I’ve tried keeping sweets out of the house, but then he goes to the store to get them…
Read MoreResearchers Adapt Digital Intervention for Dementia Care Partners for FTD, Other Dementias
In a study published in the International Journal of Environmental Health and Research, researchers at Bangor University in Wales and University College London adapted a digital training resource for dementia care partners to reflect the specific needs and preferences of carers of persons with rare dementias such as FTD. The iSupport for Dementia program was…
Read MoreRecent Study Highlights Reliability and Validity of ALLFTD Mobile App for Diagnosis and Research
A study recently published in the journal JAMA Network Open highlights the reliability and validity of a digital assessment tool, the ALLFTD Mobile App (ALLFTD-mApp) for the remote diagnosis of FTD. Developed in partnership with Datacubed Health, the ALLFTD-mApp allows clinicians to measure cognitive function in a person’s own home using a smartphone, rather than…
Read MoreApril 30, 2024: In-Person New York City Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at 5th & Mad (36th Street between 5th and Madison) on Tuesday, April 30, starting at 6:30 p.m. ET. To RSVP, send an email to Lindsay Feinberg at lindsay.feinberg@gmail.com. Download this flyer to learn more — and…
Read MoreNew York City Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at 5th & Mad, in Midtown Manhattan, on Tuesday, April 30, starting at 6:30 p.m. ET. To RSVP, send an email to Lindsay Feinberg at lindsay.feinberg@gmail.com. Download this flyer to learn more — and be sure to…
Read MoreTerre Haute, Ind. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Terre Haute, Indiana on Saturday, April 27, starting at 2:00 p.m. ET. To RSVP, send an email to AFTD Ambassador Dawn Kirby at dkirby@theaftd.org. The event will take place at Gingersnaps Coffeehouse & Cafe, located in…
Read MoreApril 27, 2024: In-Person Meet & Greet in Terre Haute, Ind.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Terre Haute, Indiana on Saturday, April 27, starting at 2:00 p.m. ET. To RSVP, send an email to AFTD Ambassador Dawn Kirby at dkirby@theaftd.org. The event will take place at Gingersnaps Coffeehouse & Cafe (located in…
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