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AFTD - Full Color Logo 2025
  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Create Your Care Team
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
    • Persons With FTD Advisory Council
    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
    • News
      • FTD in the News
      • Events
      • Press Releases
      • Videos
      • Webinars
    • Publications
      • AFTD Insights
      • Help & Hope
      • Partners in FTD Care
      • FTD Research Spotlight
      • FTD Science Digest
    • Media
      • Contact our Newsroom
  • Search

Advocacy Update: Protect FTD Research Today!

By Mike Mooney | February 21, 2025 | 0
Text: Advocacy Updates

Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your advocacy to protect it. Earlier this month, the National Institutes of Health announced…

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March 13, 2025: Northern Fort Myers, FL In-Person Meet & Greet

By Matt Ozga | February 19, 2025 | 0

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore and starting at 10:00 a.m. on…

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Northern Fort Myers, FL In-Person Meet & Greet

By Matt Ozga | February 19, 2025 | 0

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore. Email Julie at juliemoore2016@gmail.com to RSVP…

Read More

FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research

By Mike Mooney | February 19, 2025 | 0
Text: FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research | A doctor and a patient discuss the results of a test

An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways…

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The Lived Experience of FTD: FTD and Intimacy

By Mike Mooney | February 14, 2025 | 0
Text: FTD and Intimacy, by Anne Fargusson, RN | Background: A couple holds hands while they have a discussion

In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes about intimacy and FTD. Intimacy can be an uncomfortable word. Years ago, when…

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Vesper Bio Clinical Trial for FTD-GRN Enters Phase Ib/IIa

By Mike Mooney | February 12, 2025 | 0

Danish biotechnology company Vesper Bio announced in January that its clinical trial for a potentially disease-modifying drug for FTD-GRN is proceeding to phase Ib/IIa. In FTD caused by an inherited…

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