Advocate for Awareness: Working with Lawmakers to Highlight FTD

FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions, and how can advocates push for them? In this Advocacy Webinar, AFTD staff will explain the difference and share the steps that you can take…

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FTD: The Other Dementia

AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. Download this flyer to learn more.

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July 17, 2024 — FTD: The Other Dementia

AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. The event will take place on July 17, 2024, from 10:30 a.m. – 11:30 a.m. CT. It will be located at the Plymouth Community Center’s Education Wing (Classroom 1C), at 14800 34th Avenue…

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Vesper Bio Completes Single Ascending Dose Stage of Its Clinical Trial for Potential Disease Modifying Treatment for FTD-GRN

Vesper Bio Completes Ascending Dose Phase

Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial of its potentially disease-modifying treatment for FTD-GRN. The goal of the single ascending dose stage was to determine how the body absorbs, distributes, and metabolizes the drug, as well as to monitor potential side effects. The study also…

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Delaware Passes Resolution Recognizing FTD Awareness Week 2024

Delaware became the third state to officially recognize FTD Awareness Week 2024 (September 22-29) after its Senate unanimously passed the resolution SR23 on June 27. State Senator Kyra Hoffner sponsored and introduced the resolution to the legislative chamber, citing the story of Jeanne Cestone, one of her constituents. Ms. Cestone, who was present for the…

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Study Explores Racial Differences in Clinical Presentation of FTD Symptoms, Disease Severity

Graphic: Study Explores Racial Differences in Clinical Presentation of FTD Symptoms, Disease Severity

A study published in JAMA Neurology explores whether FTD symptoms present differently based on the race of the person diagnosed. Previous studies have sought to compare neuropsychiatric symptoms in Black/African American and White individuals — though, as the authors point out, this research has either been related to Alzheimer’s disease or was a part of…

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Dementia Friendly Lancaster Teepa Snow Event

Graphic: Dementia Friendly Lancaster Teepa Snow Event – August 21, 2024

AFTD volunteers Samantha Fuller and Frank Alvarez are hosting an information table at the Dementia Friendly Lancaster Workshop on August 21, 2024, from 8 AM – 4 PM, EST. Hosted by occupational therapist Teepa Snow, the workshop will provide attendees with a better understanding of what people with dementia are going through, how care partners and persons…

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Caring for Carol by Caring for Me

In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…

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