Passage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN
Biotechnology company Passage Bio released interim data for its upliFT-D clinical trial for its gene replacement therapy for FTD-GRN and announced that it is on track to expand the trial to FTD-c9orf72. Data Shows PBFT02 Increases Progranulin Long-Term In FTD caused by an inherited GRN genetic mutation, production of the neuroprotective protein progranulin is suppressed,…
Read MoreBonnie Brae Classic
Tee up for a day of golf, camaraderie, and fun at the Bonnie Brae Classic with Zach Fenoglio and friends at Red Hawk Ridge Golf Club in Castle Rock, CO! The event kicks off with an 8:00 AM shotgun start, followed by lunch, a silent auction, and a raffle. Don’t miss the creative costumes that…
Read MoreAdvocacy Update: Protect FTD Research Today!
Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your advocacy to protect it. Earlier this month, the National Institutes of Health announced that it will drastically change how its grants are funded. This abrupt reduction will slow progress in research focused on FTD and other diseases, as…
Read MoreMarch 13, 2025: Northern Fort Myers, FL In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore and starting at 10:00 a.m. on Thursday, March 13. The event will be held at Palmetto Landing Amenities Center and Clubhouse, located at 44304 Palm Frond Drive in Punta Gorda. Email…
Read MoreNorthern Fort Myers, FL In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore. Email Julie at juliemoore2016@gmail.com to RSVP for this event. Download this flyer to learn more.
Read MoreFTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research
An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways to address these obstacles in order to further diversity in FTD science globally. The article was a collaborative effort by FTD experts worldwide through the…
Read More
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)