Search results for: world ftd awareness week
AFTD News: Fall 2022, Vol. 19, Issue 3
In this issue: From Hope to Action: AFTD Commits to Bold 2022-2025 Strategic Plan; AFTD Updates Several Key Publications; Memorial Symposium Honors AFTD MAC Member and Pioneering Neuroscientist; Teaming Up…
Read MoreAFTD at 20: The Journey So Far
2002: AFTD is founded When Helen-Ann Comstock’s husband, Craig, was diagnosed with Pick’s disease — what we now refer to as FTD — there were scant resources available to affected…
Read MoreFollow AFTD on TikTok and Contribute Your Own Stories
AFTD has launched a new social media account on TikTok to help spread awareness of FTD online and get more people to #AskAboutFTD. @theaftd debuted on TikTok during World FTD…
Read MoreAFTD’s Food for Thought
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through first week of October, Food for Thought…
Read MoreRare Disease Day 2022: Think FTD
February 28 marks Rare Disease Day, an annual campaign intended to increase awareness of rare diseases and their impact on individuals and families. While FTD is classified as a rare disease,…
Read MoreAFTD News: Fall 2021, Vol. 18, Issue 3
In this issue: AFTD Publishes Landmark Report to Bring Federal Attention to FTD; New AFTD Resource Offers Guidance on FTD Genetics; Spotlight on…Dr. Joseph C. Marquez, AFTD Board of Directors;…
Read MoreAFTD Collaborates with Alector in Panel on Person-Centered Care
AFTD Advocacy Manager Matt Sharp and AFTD Ambassador Deb Scharper participated in a panel discussion on person-centered care for persons with FTD, hosted by biopharmaceutical company Alector. The discussion, which…
Read MoreAFTD Joins Wave Life Sciences for Food for Thought Event
Biotechnology company Wave Life Sciences invited AFTD Fundraising Coordinator Brittany Andrews and AFTD Ambassador Corey Esannason to discuss FTD and its impact on families in a special Food for Thought…
Read MoreAFTD Staff and Volunteer Featured in “Caregiver Solutions” Show
In a recent episode of the Caregiver Solutions Info show, AFTD staff joined host Marcia Teele to discuss World FTD Awareness Week and AFTD’s fall fundraising and awareness campaigns. AFTD…
Read MoreNY State Senator Hinchey and AFTD Raises FTD Awareness with Virtual Information Session
In observation of World FTD Awareness Week 2021, New York state senator Michelle Hinchey joined AFTD Advocacy Manager Matt Sharp for an hour-long conversation on Facebook Live on Oct. 1.…
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