Advancing Hope: AFTD Attends 2025 American Academy of Neurology (AAN) Meeting
Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier this month in San Diego. This meeting typically attracts around 14,000 international attendees, including many clinical neurologists. While in San Diego, AFTD and Registry staff worked to spread awareness about FTD and iconnect with others who can help…
Read MoreAFTD’s 2025 Driving Hope Golf Tournament (CO)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on August 10th at the Colorado National Golf Club in Erie, CO! Tickets are available for single golfers, foursomes, and dinner/drinks only guests. There are also multiple sponsorship opportunities…
Read MoreAFTD’s 2025 Driving Hope Golf Tournament (NY)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on September 29th at the Metropolis Golf Club in White Plains, NY! Tickets are available for single golfers, foursomes, and reception only guests.…
Read MoreAFTD Webinar: How to Find a Genetic Counselor
FTD has a stronger genetic risk than other dementias. While not all FTD is inherited, understanding whether the FTD in your family is genetic is crucial: it can confirm the diagnosis, inform care choices, and help you anticipate future care needs, plan financially, and allow relatives to make informed decisions around family and future planning.…
Read MorePPA Telehealth Intervention Gets Positive Results in Phase 2 Clinical Trial
A phase 2 clinical trial evaluating a telehealth therapy intervention for primary progressive aphasia (PPA) published positive results, with participants showing improvement in PPA’s communication-related symptoms. The Communication Bridge 2 clinical trial was launched to evaluate whether a specially developed speech therapy regimen could help mitigate PPA symptoms. The trial evaluated the ability of standard…
Read MoreAFTD Ambassador Spencer Cline Delivers Moving Keynote Address at Hope Rising
“We are not a product of what has happened to us. We have the power of choice.” ― Stephen Covey, Author “When your biggest fear is FTD, it makes you quite fearless to everything else.” ― Spencer Cline, AFTD Ambassador A packed Ziegfeld Ballroom in New York City took in a firsthand account of the…
Read More9th Annual Crusade for a Cure Golf Tournament
AFTD Ambassador Deb Scharper will host the 9th Annual Crusade for a Cure Golf Tournament on August 30, 2025, with proceeds benefiting AFTD’s Research Initiatives. The tournament will be held at Sunny Brae Golf Course (Osage, IA) and will feature a two-person best shot format on 18 holes, four hole-in-one opportunities, plus mulligan and fairway games. There will…
Read MoreAdvocacy Update: Amplifying AFTD’s Advocacy
AFTD is deeply concerned about staff cuts and funding disruptions at the U.S. Department of Health and Human Services (HHS), and the potential impact they will have on dementia-focused research and programs across the agency. In partnership with other advocacy organizations, AFTD has been communicating with policymakers about the importance of these programs for people…
Read MoreStudy Evaluates the Efficacy of Nasally Administered Hormone for Apathy in FTD
A study published in the journal The Lancet Neurology evaluates the efficacy of the hormone oxytocin as a treatment for apathy, a common symptom of FTD disorders. Co-authors of the study include AFTD Medical Advisory Council (MAC) chair-elect Chiadi Onyike, MD; current MAC members Adam Boxer, MD, Howard Feldman, MD, and Carmela Tartaglia, MD; emeritus…
Read MoreABC News Honors AFTD Ambassador Spencer Cline as “Person of the Week”
Raising FTD awareness was a key goal of Spencer Cline’s as he set out from Oregon on a bike ride across America last summer. He got a well-deserved tailwind in that achievement from ABC’s World News Tonight last Friday; he was honored as “Person of the Week,” with anchor David Muir describing his challenges and…
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