Bonnie Brae Classic

Tee up for a day of golf, camaraderie, and fun at the Bonnie Brae Classic with Zach Fenoglio and friends at Red Hawk Ridge Golf Club in Castle Rock, CO! The event kicks off with an 8:00 AM shotgun start, followed by lunch, a silent auction, and a raffle. Don’t miss the creative costumes that…

Read More

Advocacy Update: Protect FTD Research Today!

Text: Advocacy Updates

Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your advocacy to protect it. Earlier this month, the National Institutes of Health announced that it will drastically change how its grants are funded. This abrupt reduction will slow progress in research focused on FTD and other diseases, as…

Read More

March 13, 2025: Northern Fort Myers, FL In-Person Meet & Greet

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore and starting at 10:00 a.m. on Thursday, March 13. The event will be held at Palmetto Landing Amenities Center and Clubhouse, located at 44304 Palm Frond Drive in Punta Gorda. Email…

Read More

FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research

Text: FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research | A doctor and a patient discuss the results of a test

An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways to address these obstacles in order to further diversity in FTD science globally. The article was a collaborative effort by FTD experts worldwide through the…

Read More

The Lived Experience of FTD: FTD and Intimacy

Text: FTD and Intimacy, by Anne Fargusson, RN | Background: A couple holds hands while they have a discussion

In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes about intimacy and FTD. Intimacy can be an uncomfortable word. Years ago, when my husband and I were in premarital counseling, the therapist referred to it as “conjugation.” At the time, I had no idea what he meant;…

Read More