The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Advancing Hope: AFTD Attends AAIC 2024.

Debra Niehoff, Kim Jenny, and Shana Dodge from AFTD and Sweatha Reddy from the FTD Disorders Registry attended the Alzheimer’s Association International Conference (AAIC), which took place in Philadelphia starting…

The Lived Experience of FTD: Getting to Know the Persons with FTD Advisory Council: Deb Jobe

Formally chartered in 2020, the Persons with FTD Advisory Council works to ensure that the insights and perspectives of people living with FTD are included in the development of AFTD’s…

Neurology Live Aviado Bio CMO - FB LI TW

Aviado Bio CMO Discusses ASPIRE-FTD Clinical Trial with Neurology Live

In a recent interview with Neurology Live, Aviado Bio chief medical officer David Cooper, MD, discussed the company’s Phase 1/2 ASPIRE-FTD trial. Dr. Cooper shared how the company’s AVB-101 gene…

Advocacy Update: FTD Awareness Week

With FTD Awareness Week quickly approaching, we asked AFTD advocates to help us obtain a resolution or proclamation in every state, and the community has definitely risen to the occasion.…

AFTD Brand Influencer Discusses Commitment to Caring

AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast Miss Represented earlier this year. Petrie is a model, activist, and entrepreneur, and…

Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy

A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset dementias (YODs) like FTD in the Brescia province of Italy. As highlighted by…

Image: AFTD Ambassador Debbie Elkins shares her story on podcast.

AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast

AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July to discuss the changed nature of…

Interactive Map Simplifies Search for Help on New AFTD “Find Support” Page

AFTD has just launched a new page designed to simplify your search for answers. We added an FTD Support Group and Diagnostic Center Locator, which includes a map that allows…

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