Thanks to Generosity of AFTD Ambassador, Californians Receive Crucial Financial Help
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she…
Read MoreAFTD Care Partner Learning Series Webinar: Navigating the Holidays with an FTD Diagnosis
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences.…
Read MoreAFTD Advocacy: State Resolution Training
This training will cover the process of how to obtain a resolution — from identifying your legislators to receiving your approved resolution. It will also cover press strategies to maximize…
Read MoreYoung Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast
A young FTD caregiver named Lizzie discussed the grief, uncertainty, and unexpected responsibilities she faced as she cared for her father — all while navigating the natural changes of young…
Read MorePerspectives in FTD Webinar: FTD Research 2024 — Where We’ve Come From and Where We’re Headed
The science of FTD is evolving at a rapid pace and it can be difficult to interpret the scientific advancements and how they may impact families facing an FTD diagnosis.…
Read MoreAFTD Webinar: Care Partner Learning Series — Navigating the Holidays with an FTD Diagnosis
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences.…
Read MoreAdvancing Hope: AFTD Staff Attend NORD Breakthrough Summit in Washington, DC
Shana Dodge, PhD, AFTD’s Director of Research Engagement and Meghan Buzby, MBA, AFTD’s Director of Advocacy and Volunteer Engagement attended the National Organization for Rare Disorders (NORD) Breakthrough Summit, held…
Read MoreGemVax & KAEL Announces Results from Phase 2a Clinical Trial for PSP
South Korean biopharmaceutical company GemVax & Kael announced in late October the results from its phase 2a clinical trial evaluating a drug for PSP. While the drug failed to show…
Read MoreDear HelpLine: Navigating Travel During the Holidays
Dear HelpLine, I am thinking of traveling to see family this year for the holidays, but this would be the first time taking my wife since she was diagnosed with…
Read MoreA Conversation with Alector’s Vice President of Clinical Development
Earlier this year, the biopharmaceutical company Alector announced that the U.S. Food and Drug Administration (FDA) had granted a “breakthrough therapy designation” to latozinemab, the company’s investigational drug designed to…
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