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AFTD - Full Color Logo 2025
  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Create Your Care Team
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
    • Persons With FTD Advisory Council
    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
    • News
      • FTD in the News
      • Events
      • Press Releases
      • Videos
      • Webinars
    • Publications
      • AFTD Insights
      • Help & Hope
      • Partners in FTD Care
      • FTD Research Spotlight
      • FTD Science Digest
    • Media
      • Contact our Newsroom
  • Search

BBC to Air Documentary on Former Rugby Player with Motor Neuron Disease 

By Mike Mooney | October 5, 2022 | 0
The BBC will air a documentary about former rugby player Rob Burrow, who was diagnosed with motor neuron disease

The British Broadcasting Corporation (BBC) is set to air a documentary that highlights the experiences of a former professional rugby player who was diagnosed with motor neuron disease (MND).   Rob…

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Second Annual 5Keg Fun Run at Bill’s Best Brewery

By Matt Ozga | October 4, 2022 | 0

Bill’s Best Brewery in Glenside, Pennsylvania — a long-time supporter of AFTD — is holding its second annual 5Keg Fun Run on October 8. All proceeds benefit AFTD’s mission. Registration…

Read More

FDA Announcement on ALS Drug Reflects Growing Hope for Treatments

By PJ Lepp | October 1, 2022 | 0
FDA Announcement on ALS Drug

The FDA’s recent approval of a new drug to treat ALS signals important and promising developments for our community. In clinical trials, the drug, which will be marketed as Relyvrio…

Read More

Words of Encouragement: Sharing the Journey to Diagnosis

By PJ Lepp | September 29, 2022 | 0
World FTD Awareness Week, sharing the journey to diagnosis header

World FTD Awareness Week 2022 began on Sunday. To mark this yearly event, AFTD asked people to share their stories of obtaining an FTD diagnosis on social media. Members of our…

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AFTD Pleased to Announce New Brand Ambassador Nicole Petrie

By PJ Lepp | September 28, 2022 | 0
AFTD is please to announce that social media influencer Nicole Petrie as a new brand ambassador for the organization

ADTD is pleased to announce an official partnership with Nicole Petrie, a social media influencer and AFTD volunteer who is also a care partner for her mother. Over the next…

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AFTD Ambassador Shares FTD Information, Experiences on Facebook Live 

By Mike Mooney | September 27, 2022 | 0
AFTD Ambassador Jerry Horn shared facts about FTD and his own personal experiences with it on Facebook Live

AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts Alzheimer’s Center to talk about FTD and share his firsthand experiences as a…

Read More
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The Association for Frontotemporal Degeneration
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