AFTD Webinar: Sharing Your Story to Make a Difference — How to Connect with Legislators and Create Change
Cuts to federal programs are threatening the support systems that people living with FTD and their families rely on. Now more than ever, your voice matters. In this AFTD Advocacy Webinar, you’ll learn how to share your FTD journey with legislators in a way that drives real change. We’ll walk you through how to prepare…
Read MoreGuest Feature: Forget Me Not
The following Guest Feature was written by Jessica Powers, who is a care partner for her mother, Michelle. “Jessy, look what I planted for you. I know how much you love this flower.” I did. Forget me not. I was 8 or 9. Decades later, this flower will be tied to my fondest memories of…
Read MoreLifestyle Changes Can Improve Cognition in Older Adults at Risk of Decline, Alzheimer’s Study Finds
Lifestyle changes, whether structured or self-guided, can improve cognition in older adults at risk of cognitive decline, according to the results of the Alzheimer’s Association’s US POINTER study. Structured Lifestyle Changes Yielded More Significant Results The POINTER study evaluated two lifestyle interventions for their effectiveness in improving participants’ cognition. While both protected participants’ cognition from…
Read More5k Fun Run for AFTD at William and Mary
AFTD Ambassador Carrie Edwards and William & Mary student Sherlin George are hosting a 5k race on Saturday September 27, 2025. The course is exclusively on The College of William & Mary’s historic campus in Williamsburg, VA. There will be plenty of fun and FTD awareness! The race will kick off at 8 am at…
Read MoreAFTD CEO Susan Dickinson to Retire in May 2026; AFTD Board Leading Search for Successor
When Susan L-J Dickinson was hired to lead AFTD, the organization had just two other part-time employees. Much of its day-to-day work was done by a small group of passionate volunteers, including AFTD’s all-volunteer Board of Directors and Medical Advisory Council. Its budget was $400,000. With Ms. Dickinson at the helm, AFTD has grown into…
Read MoreUnderstanding Dementia with a Focus on Frontotemporal Degeneration (FTD)
AFTD Ambassador Dawn O’Gara will be joining representatives of the Alzheimer’s Association to hold a virtual presentation on FTD and Alzheimer’s disease on Tuesday, August 19, 2025 from 12:00 PM – 1:00 PM EDT. The presentation will provide participants with the opportunity to learn about the signs and symptoms of FTD and Alzheimer’s, and the resources available through…
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