From Hope to Action:
Strategic Plan Highlights: Overview | Vision, Mission, Values | Strategic Themes | Four Goals | Your Support Makes This Work Possible
Strategic Themes: 2022-2025
To inform creation of this Strategic Plan, AFTD conducted 16 key informant interviews, four focus groups, a survey of Board and staff, a comparative analysis of other leading disease-focused organizations, and a community survey. Major themes emerged during this discovery and validation process, forming the basis of our strategic plan.
Leveraging the unique role AFTD can play in advancing research
Convening; Collaboration; Consensus-building
Building a community of empowered and engaged research participants
Whose perspective informs research design and government regulators
Educating health professionals
To enable access to an accurate FTD diagnosis and knowledgeable, appropriate care
Informing and supporting families facing a genetic variant that causes FTD
Providing information; creating a supportive community; enabling research participation
Creating new mechanisms and programs for connection and support
With an emphasis on currently underserved communities
Expanding our reach by scaling existing programs
For people with FTD and care partners
Enabling our community to advocate for and drive change
Empowering our community through advocacy campaigns, speaking engagements, and other volunteer programs
Enhancing AFTD’s engagement with stakeholders
Refining AFTD’s data systems to tailor engagement to the needs of each individual and family we serve
Ensuring the sustainability of an expanded organization
Adding staff to better channel volunteer and donor engagement, better collaborate with other organizations to advance research, and drive support and education
Strengthening infrastructure
Staff engagement and professional development; data structures and security; systems and processes that create efficiencies in how we work; measuring our impact
Strategic Plan Highlights: Overview | Vision, Mission, Values | Strategic Themes | Four Goals | Your Support Makes This Work Possible
Download the full AFTD Strategic Plan 2022-2025 here.