New York
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
In Your State
Groups In Surrounding States
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
In Your State
Medical Centers In Surrounding States
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at [email protected]
Jacqueline Butler-Gamble
[email protected]
(Click here to learn more about Jacqueline Butler-Gamble’s connection with AFTD)
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
Sandra Gonzalez-Morett
[email protected]
(Click here to learn more about Sandra Gonzalez-Morett’s connection with FTD)
Jackie Shapiro
[email protected]
(Click here to learn more about Jackie Shapiro’s connection with FTD)
Sign Up To Receive AFTD Alerts
News & Events Near You
Guest Feature: Finding Support and Understanding on the Go with the Hidden Disabilities Sunflower
For persons diagnosed with FTD, simply existing in public can be challenging. FTD’s symptoms can cause difficulties…
Dementia Advocate with FTD Shares Her Perspective on Losing Her Driver’s License
In a blog article published by the Older Persons Advocacy Network of Australia, dementia advocate Gwenda Darling…
May 11, 2024: In-Person Meet & Greet in Leicester, Mass.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet…
FTD Care Partner Shares Memories of Her Mother on TikTok
In an interview with Newsweek, FTD care partner Channing Clifford shares her favorite memories with her mother,…
The Lived Experience of FTD: Driving and FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…
Link Between TAF15 Protein and FTD Discovered in UK Study
In a study published in the scientific journal Nature, researchers in the United Kingdom discovered that a…
Dear HelpLine: Looking for Support Options
Dear HelpLine, Our family is looking for ways to connect with other FTD care partners for support….
March 30, 2024: In-Person Meet & Greet in Los Angeles, Calif.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet…
High-Profile FTD Diagnoses Boost Public Awareness, AFTD Ambassador Says
In a March 1 interview with the Rochester, Minn.-based station KAAL-TV, AFTD Ambassador Deb Scharper noted that…
March 23, 2024: In-Person Meet & Greet in Spring Valley, Minn.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet…