Downloadable Resources
The following publications were produced by AFTD or with AFTD input:
Booklets on FTD
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- This AFTD publication helps individuals and families take a strategic approach to a new diagnosis of FTD and prepare for the changes it brings.
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- An important AFTD resource, Walking with Grief offers a deep and comprehensive guide to navigating the grief that FTD imposes. The booklet draws on personal stories from care partners and persons diagnosed to offer guidance, resources, and coping mechanisms to help all whose lives are touched by this disease.
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- A collaborative effort between AFTD and the University of Pennsylvania’s Center for Neurodegenerative Disease Research, this booklet contains information on the role genetics plays in FTD.
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- The AFTD Task Force on Families with Children produced this booklet, aimed at parents with young children and teens. What About the Kids? is a sensitive, practical guide for parents to help their children deal with a parent who has FTD.
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- This powerful 18-minute documentary follows four families whose lives have been touched by FTD. By telling their stories, these families reflect common experiences and become harbingers of hope. You can watch the film on YouTube, or order a DVD. (The DVD comes with an informational booklet, which is also available to download.)
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- Produced by the National Institute on Aging, this free booklet discusses FTD’s causes, symptoms and care-management strategies in simple, easy-to-understand language. The booklet contains contributions from AFTD.
General Information
Diagnostic Checklists
Newly Diagnosed Checklist
Help & Support
