Hawaii
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at cjohnson@theaftd.org
Carrie Johnson
cjohnson@theaftd.org
(Click here to learn more about Carrie Johnson’s connection with AFTD)
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
Melissa Fisher
mfisher@theaftd.org
(Click here to learn more about Melissa Fisher’s connection with FTD)
Sign Up To Receive AFTD Alerts
News & Events Near You
Advancing Hope: AFTD and Registry Staff Attend International Dementia Conference
AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of…
Dear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t…
Emma Heming Willis Shares Family Updates on The Oprah Podcast
Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast”…
AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview
Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels…
Guest Feature: Learning to live with familial FTD
The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year…
AFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution
AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s…
Emma Heming Willis Interviewed by Diane Sawyer in Prime-Time Special
Emma Heming Willis was interviewed Tuesday night, August 26, on “Emma and Bruce Willis: The Unexpected Journey…
Book About Family’s FTD Journey Helps Raise Funds for AFTD’s Mission
“No Fault of His Own,” a novel released this summer, was the focus of a recent AFTD…
The Lived Experience of FTD: Talk Therapy in FTD – Risks and Benefits
The following article was written by Anne Fargusson, RN, a member of AFTD Persons with FTD Advisory…
Ferrer PSP Drug Receives Fast Track Designation from U.S. FDA
Spanish pharmaceutical company Ferrer announced that its experimental drug for progressive supranuclear palsy (PSP) has received a…
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)