We’re recruiting: AFTD is now hiring an Education Program Manager. This vital addition to our staff will develop and implement FTD education initiatives for healthcare professionals, a crucial component of reaching and better serving all who are affected by FTD, and driving hope for a future free of this disease. Review the job announcement and please forward it widely in your networks today!
AFTD is also seeks a well-organized and dynamic Grassroots Events (GRE) Coordinator to expand and lead a growing national network of grassroots events. Reporting to the Special Events Manager, and working collaboratively with AFTD’s Board, staff, and national network of grassroots events volunteers, the position will engage an emergent and passionate rare disease community in raising awareness, visibility, and grassroots income. Click here to learn more.
Susan L-J Dickinson, M.S., CGC | Chief Executive Officer
Susan Dickinson, M.S., CGC, AFTD Chief Executive Officer (CEO), joined AFTD in February 2008. A certified genetic counselor, she brings more than two decades of experience facilitating communications among lay, scientific and medical communities. Under her leadership, AFTD has expanded dramatically in scale and impact, from a $400,000 organization with a part-time staff of three to a $5 million organization with 20 full-time staff. During her tenure, AFTD has expanded programs to meet and advocate for the needs of FTD families, and invested in specific strategies to advance FTD research and drug development, including two multi-year, multi-million dollar research initiatives targeting FTD diagnosis and treatment. Ms. Dickinson also serves on the Advisory Council for the National Institute for Neurological Disorders and Stroke. She holds an M.S. in genetic counseling from Arcadia University and B.A. in biology and psychology from Swarthmore College.
Sharon S. Denny, M.A. | Senior Director of Programs
Sharon joined AFTD as Program Director in September 2008. She was promoted to Senior Director of Programs in January 2019. She has more than 30 years of experience working with nonprofits that serve people with disabilities and their families. At AFTD, she has led strategic development of support and education efforts for people with FTD, their care partners and families, and healthcare professionals. She advocates for the inclusion of persons living with FTD and drives community engagement across several platforms, including AFTD’s volunteer, support services, education and advocacy programs. She acts as a crucial liaison between AFTD and the external community served by our mission.
Ben C. Freeman | Development & Communications Director
Ben joined AFTD as Development & Communications Director in February 2015. He brings more than ten years of experience in nonprofit development and communications, and past background in IT and technology systems. For a decade, he served as Development Director for the Paraprofessional Healthcare Institute, helping to scale its work to improve care for elders and people living with disabilities. Ben works with AFTD’s staff, Board, and community to raise awareness, expand the organization’s visibility, and strengthen its impact and sustainability.
Christine Stevens, M.B.A. | Chief Financial Officer
Christine joined AFTD in July 2017 as Chief Financial Officer. Christine spent the early portion of her career working for entrepreneurial startups, building teams and systems to enable growth at fast-paced companies. In 2003, she left the for-profit world to begin her own small business in Wayne, PA. In 2008 she joined the nonprofit world as Director of Finance for Women Against Abuse. In recognition of her work there she was named the 2013 Philadelphia Business Journal Non-Profit CFO of the year. She holds an M.B.A. from Northeastern University, and a B.A. in Economics from St. Lawrence University. She earned her CPA license working for PricewaterhouseCoopers.
Nadine Tatton, Ph.D. | Scientific Director
Nadine joined AFTD as Scientific Director in June 2013. She has more than 20 years’ experience as a neuroscientist in basic science and translational research, combined with technology transfer and business development expertise. She has a personal connection to ALS, having been a family caregiver and is deeply committed to the translation of scientific discoveries into treatment opportunities that will benefit patients and caregivers alike in FTD and other neurodegenerative disorders.
Bridget Graham | Special Events Manager
Bridget joined AFTD in October 2015 as Grassroots Events (GRE) Coordinator and assumed her current position in January 2019. She holds a B.S. in Speech Communication from Millersville University of Pennsylvania. As GRE Coordinator, Bridget expanded and refined AFTD’s national network of grassroots events, managing national branded campaigns and independent, host-driven events that collectively raised more than $1 million in support of AFTD’s mission. In her current role, she oversees AFTD’s annual Hope Rising Benefit and manages major branded fundraising events throughout the year, while also supervising the overall GRE program.
Kerri Keane, M.S.W. | Volunteer Manager
Kerri joined AFTD as Volunteer Manager in September of 2012. She has over 13 years of experience advocating for and supporting the needs of individuals, with life-threatening and debilitating diseases, and their families. Her extensive background includes developing and implementing effective programs and a passion for volunteering. Her volunteer work includes spearheading and managing a grassroots advocacy coalition in Pennsylvania for four years and completing two international missions through Doctors Without Borders. Kerri’s skills and experiences will be used to strengthen and develop the AFTD volunteer network.
Amanda Knight | Development Manager
Amanda joined AFTD as Development Manager in November 2018. She brings more than eight years of progressive nonprofit development experience, including four years with the Greater Philadelphia Chapter of the ALS Association, where she managed donor databases and supported a wide range of the organization’s fundraising efforts. She most recently worked as a development associate with the United Way of Greater Philadelphia and Southern New Jersey, where she assisted major gift officers in high-level donor engagement. As a member of AFTD’s development and communications team, Amanda manages individual giving (including annual campaigns), corporate and foundation fundraising, AFTD’s donor database and foundation metrics, donation processing and acknowledgement, and the expansion of the organization’s digital fundraising.
Bridget Moran-McCabe, M.P.H. | Support Services Manager
Bridget joined AFTD as its first Support Services Manager in May 2015. She holds an MPH from Drexel University. In a career spanning more than 15 years, Bridget has worked to develop new programs and research projects serving vulnerable populations, such as those with terminal illnesses, people experiencing homelessness, children that have experienced trauma, and individuals contemplating suicide. She now works to develop and sustain AFTD’s network of support: providing leadership and training to our wonderful volunteers who allow groups to come together to share their stories, learn ways to advocate, and gain much needed coping skills and strategies. She also works collaboratively with staff and volunteers to provide new avenues for support and resources, and believes until there is a cure for FTD, bearing witness and creating a space for those affected to tell their story is the most important support we can offer FTD families. She is honored to work with all who are sharing their time and talents to do so.
Debra Niehoff, Ph.D. | Research Manager
Debra joined the AFTD staff in October 2015 as Research Manager. A neuroscientist by training, she holds a Ph.D. from the Johns Hopkins University School of Medicine. The author of two popular science books, her experience includes teaching at the college level and scientific and medical writing, as well as service on the board of a drug and alcohol treatment facility in Bucks County, PA. Debra is responsible for the administration of AFTD grant funding programs as well as planning for the FTD Treatment Study Group.
Matthew Ozga | Communications Manager
Matthew joined AFTD in October 2016. He brings more than a decade of experience writing for diverse audiences, including seven years of experience in nonprofit communications as the staff writer/editor for the Paraprofessional Healthcare Institute. In collaboration with AFTD’s development and communications team, Matthew works in varied contexts to support AFTD’s sustainability and public presence. He holds a Bachelor’s in journalism from New York University.
Matthew Sharp, M.S.S. | Program Manager
Matthew joined the staff in December 2009 as Program Coordinator. Having earned his Master of Social Service degree from Bryn Mawr College’s Graduate School of Social Work and Social Research, he made a career transition to social services from the field of natural sciences. Matt is integral to AFTD’s patient and caregiver support and education efforts, and is responsible for the development of AFTD’s Grassroots Network.
Jeff Thompson | Office Manager
Jeff joined AFTD in January 2018 as Office Manager. Jeff brings close to thirty years of experience in staff accounting, information technology support, and customer relationship management skills from organizations of both global and local scale. He has had experience supporting back office functions in the nonprofit world — most recently in higher education environment, where he worked closely with directors to streamline processes and implement new systems.
Trudy Bowman | Development Coordinator
Trudy joined AFTD as Development Coordinator in February 2018. With a B.S. in Health Policy and Administration from Pennsylvania State University and more than two years of experience volunteering at a foundation, Trudy brings a focus on relationship management and strategic planning to the Coordinator position. Trudy will play a key role in fundraising appeals, donor engagement, corporate and foundation fundraising, donation processing, and donor acknowledgment and recognition.
Lauren Martin Gauthier | Online Community Coordinator
Lauren joined AFTD as Online Community Coordinator in August 2017. Lauren’s career spans 16 years, mostly spent in the nonprofit sector, where her primary focus has been on marketing and social media management. In her previous roles she developed social media strategy, created and implemented innovative and successful marketing campaigns and grew the digital audience, influence, reach and impact of multiple organizations. As Online Community Coordinator, Lauren works to deepen AFTD’s engagement with its community through social media, e-newsletters and other forms of digital communications.
Cameron Kelsall, M.A. | Staff Writer
Cameron Kelsall joined AFTD as Staff Writer in September 2018. Cameron brings extensive experience in journalism, publishing and corporate communications to his position. After earning his M.A. in English and Creative Writing from Ohio University, he spent two years working as a staff writer for HemOnc Today, a leading medical news source for hematology and oncology. During his tenure with HemOnc Today, he won the APEX Award for excellence in media. More recently, he served as editor of Journal of Clinical Pathways, a peer-reviewed periodical focused on value-based medical care. As a member of AFTD’s development and communications team, Cameron works to create and curate relevant content for AFTD’s print and online platforms while aiding in applying for grants and facilitating donor-related communications.
Ann Schoonover, M.S.W, L.S.W. | HelpLine Advisor
Ann joined AFTD as HelpLine Advisor in April 2018. She has over 10 years of experience helping individuals and families access resources and services in mental health and healthcare settings. A licensed social worker, Ann has worked in hospitals and skilled nursing facilities; she has also advocated for older adults and caregivers as a geriatric care manager. Ann actively works to maintain and enhance the quality of resources available for individuals seeking support through the HelpLine. She received her Master’s in Social Work from West Chester University and Bachelor’s in Social Work from Eastern University.
Harold “Hal” Perkins III, M.P.H. | Programs and Services Administrative Assistant
Hal joined AFTD in February 2016. His background includes customer service, sales and print sales roles. In his role, Hal provides administrative support to AFTD’s Program Director, and managers of the organization’s volunteer, support services, education and advocacy programs. Reporting to AFTD’s Volunteer Manager, he provides administrative support to help the organization sustain and expand its program impact.
Emma Tomasetti | Development Assistant
Emma joined AFTD as Development Assistant in February 2018. Emma has a B.A. in Business Administration from Arcadia University and brings experience working in the nonprofit sector, specifically in volunteer efforts, event planning, and fundraising. In her previous roles, she assisted with fundraising and logistical projects, handled donations, and assisted volunteers, allowing her to become familiar with nonprofit operations. As Development Assistant, Emma plays a key role in donor engagement, donation processing, and donor acknowledgment and recognition.
Elizabeth R. Young | Executive Assistant/Event Coordinator
Elizabeth joined AFTD as Executive Assistant/Event Coordinator in February 2018. She spent the last 16 years as administrative assistant at several banks, supporting the managing director and other team members in their efforts to assist bank clients at not-for-profit healthcare systems and hospitals throughout the U.S. Prior to that, she was the administrative assistant/meeting planner for a not-for-profit continuing education firm. She holds a B.S. in business management from Penn State University.