Calendar of Events
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4 events,
“Smple Mnds” Fundraiser
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 20% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
The Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
5 events,
Frontotemporal Degeneration (FTD): Symptoms, Diagnosis, Responses, Outcomes, Family Stories
Frontotemporal Degeneration (FTD): Symptoms, Diagnosis, Responses, Outcomes, Family Stories
AFTD Volunteers Bruce Lipman and Erica Heffernan will be hosting an informational session at the Evanston Public Library on July 2 from 6-7:30 PM, CDT to offer powerful, personal perspectives on FTD. During this session, Bruce will share his insights as a care partner and support group volunteer, while Erica will discuss her experiences as…
5 events,
Pittsburgh, Pa. Virtual Meet & Greet
Pittsburgh, Pa. Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15. RSVP by emailing event host Janet Freburger at janet.freburger@gmail.com. You can also download this flyer to learn more.
5 events,
FTD: The Other Dementia
FTD: The Other Dementia
AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. Download this flyer to learn more.
5 events,
19th Annual George F. Sidoris Memorial Golf Outing
19th Annual George F. Sidoris Memorial Golf Outing
The 19th Annual George F. Sidoris Memorial Golf Outing will be held on July 20, 2024 at the Lost Nation Golf Course in Willoughby, Ohio. The event will feature a shotgun start, four person scramble format, closest to the pin and most accurate drive contests, door prizes, a raffle and steak dinner. All proceeds to…
5 events,
Advocate for Awareness: Working with Lawmakers to Highlight FTD
Advocate for Awareness: Working with Lawmakers to Highlight FTD
FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions, and how can advocates push for them? In this Advocacy Webinar, AFTD staff will explain the difference and share the steps that you can take…
5 events,
Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers
Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers
AFTD volunteer Sharon Land will be hosting an information table at the event Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers, being held at the YWCA of Elyria on Wednesday, July 31 from 12-2 PM EDT. Visit the event webpage to learn more or register.