Calendar of Events
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6 events,
At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
The Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
“Smple Mnds” Fundraiser
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 40% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
Subaru Share the Love Event 2024
Scott Campbell of Subaru of Muskegon, Mich., designated AFTD as a Hometown Charity for the 2024 Subaru Share the Love Event. This means that from November 21 to January 2, AFTD will receive $75 for every new Subaru they sell or lease. For every routine service visit, an additional $5 will be divided amongst all…
Simply Relaxing Coloring Pages
Janice Mandes created a one-of-a-kind coloring book called Simply Relaxing Coloring Pages in honor of her mom. Janice made it to inspire creativity and provide a calming activity for individuals and families impacted by frontotemporal degeneration (FTD). This project was inspired by her mom, who is living with FTD. She wanted to create coloring pages…
5 events,
National Virtual Meet & Greet – January 2025
National Virtual Meet & Greet – January 2025
Join this first-ever national Meet & Greet event specifically for people living with FTD. This virtual event will be held over Zoom and will be co-hosted by AFTD volunteer Dorothy Pearman and AFTD Ambassador Jackie Shapiro. Register by clicking here. To learn more, download this flyer.
5 events,
In-Person Meet & Greet in Middlesex, N.J.
In-Person Meet & Greet in Middlesex, N.J.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Norma Edom and AFTD Ambassador Sandra Gonzalez-Morett. RSVP for this event by emailing Norma at nedom@optonline.net. To learn more, download this flyer.
5 events,
In-Person Meet & Greet in Fort Wayne, Ind.
In-Person Meet & Greet in Fort Wayne, Ind.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Kathleen Hanold Watland, who will soon be starting a new FTD support group. RSVP for this event by emailing khwatland@gmail.com. To learn more, download this flyer. For any additional questions, call Kathleen at…
6 events,
Virtual Meet & Greet for MT, WY, ND, and SD
Virtual Meet & Greet for MT, WY, ND, and SD
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota on Saturday, January 25, starting at 11:00 a.m. MT. RSVP for this event by emailing event host Susan Meagher at suselenae@gmail.com. To learn more, download this flyer.
4th Annual Babson Basketball Fundraiser Game
4th Annual Babson Basketball Fundraiser Game
Spencer Cline and the Babson Men's Basketball Team are hosting the 4th Annual Babson Basketball Fundraiser Game on Saturday, January 25, 2025. In the past three years, the team has raised nearly $27,000 in support of AFTD’s mission in memory of Spencer’s father, Lawrence, who was diagnosed with FTD at the age of 50.
5 events,
AFTD Advocacy Webinar: Paving The Path Forward — Advancing AFTD’s Public Policy Priorities
AFTD Advocacy Webinar: Paving The Path Forward — Advancing AFTD’s Public Policy Priorities
Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this webinar, the AFTD advocacy team and experts at the Washington, DC lobbying firm Innovation Policy Solutions will explain how you can advance these and other…
5 events,
FTD: The Other Dementia — Information Session in Plymouth, MN
FTD: The Other Dementia — Information Session in Plymouth, MN
AFTD Ambassador Nanci Anderson is hosting an FTD information session at the Plymouth Community Center in Plymouth, Minn. She will provide an overview of FTD and discuss resources available in the Twin Cities and from AFTD. This session is being sponsored by the city of Plymouth. RSVP by emailing Nanci at nanderson@theaftd.org.
5 events,
Online Event – Genetics of FTD and Genetic Research
Online Event – Genetics of FTD and Genetic Research
Join AFTD for the Alzheimer's San Diego online panel discussion, in which Kim Jenny, MS, LCGC, AFTD's Manager of Genetic Initiatives, and Dr. Alison Goate, Chair of the Department of Genetics and Genomic Sciences at the Icahn School of Medicine at Mount Sinai, will discuss the links between genetics and frontotemporal degeneration and other young…
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