Calendar of Events
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3 events,
Ellie’s Butterflies
Ellie's Butterflies is a children's picture book written by Alecia Smith, described as a "loving story about understanding dementia." When Alecia's father was diagnosed with FTD at the age of 61, all three of her children were under the age of five. Alecia searched for a children's book that could help her have a conversation…
Tangle Syx – 1% for AFTD
Tangle Syx, a sustainable clothing company, is donating one percent of all sales to support AFTD’s mission in honor of founder Alyssa Radcliff’s husband, Chris Radcliff. He was diagnosed with FTD in 2012, when the couple’s twins were only two years old. Chris, who was a senior engineer, died in 2016 at the age of…
Charity Miles March Sponsorship – Arden Courts
With March’s arrival, we are happy to announce a new Charity Miles sponsorship and mileage goal. AFTD is grateful for Arden Courts’ sponsorship and support of our mission on Charity Miles. During the month of March, every mile that community members log on the app on our behalf will be matched $1/mile, up to 10,000…
4 events,
The 12th International Conference on Frontotemporal Dementias and 1st International Society for Frontotemporal Dementias Congress
AFTD is a sponsor of the 12th International Conference on Frontotemporal Dementias and 1st International Society for Frontotemporal Dementias Congress, to be held virtually by the International Society for Frontotemporal Dementias. This meeting will feature opening remarks by AFTD CEO Susan L-J Dickinson and will feature presentations from numerous members of the AFTD Medical Advisory…
5 events,
Externally Led Patient-Focused Drug Development Meeting
Externally Led Patient-Focused Drug Development Meeting
On March 5, AFTD hosted a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting with representatives of the U.S. Food and Drug Administration. We're grateful to the hundreds of people and families from around the world who participated in this important opportunity to make the FDA aware of the urgent need for FTD treatments. We…
4 events,
Central Time Zone Young Adult Virtual Meet & Greet
Central Time Zone Young Adult Virtual Meet & Greet
Join AFTD Ambassador Corey Esannason on March 11 from 7 pm - 8 pm CT for a Virtual Meet & Greet for young adults, ages 20-45, located in the Central Time Zone who have a parent living with FTD. E-meet (via Zoom video conference) others whose lives are affected by FTD. RSVP is required to…
5 events,
A Lot Like Fun – Only Different
A Lot Like Fun – Only Different features stories, past and present, of author Jack Livingston and his longtime friend Chris Kelley, who is currently living with FTD. Jack says, “Chris was the ringleader of ‘cool stuff,’ routinely sweeping up anyone and everyone that was bold or naïve enough to join him in his rule-bending,…
PPA Conference: Communication & Connection 2021
PPA Conference: Communication & Connection 2021
AFTD is a sponsor of the 2021 PPA Conference, an online education and support virtual conference for persons living with primary progressive aphasia, their families and professionals, held by Northwestern University's Mesulam Center for Cognitive Neurology and Alzheimer’s Disease. Participants will be able to learn about PPA from the experts at Northwestern University, receive support…
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