American Samoa
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
Sign Up To Receive AFTD Alerts
Denali and Takeda Open FTD-GRN Clinical Trial Site at UPenn
Denali Therapeutics and Takeda Pharmaceutical Company’s phase 1/2 clinical trial for FTD caused by GRN mutations is…
Tips & Advice: Incontinence – A Troubling Symptom
Incontinence is a common symptom of FTD and other dementias. But for both care partners and persons diagnosed,…
Ohio Care Partner Shares Story to Help Others on the FTD Journey
Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the…
Can a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies
A study published in Science Translational Medicine explores how well the brain imaging tau PET tracer F-MK-6240…
Help & Hope in Review: The Top Articles of 2024
AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease your family’s FTD…
Dear HelpLine: The Differences Between Clinical Research and Clinical Medical Care
Dear HelpLine, I have FTD and have enrolled in a research study at a major medical center….
Linde Jacobs Shares Her Family’s FTD Journey with the New York Times
A recent article in The New York Times highlights the inspiring story of Linde Jacobs, a nurse…
AFTD Research Team: A Year in Review
2024 has been a hopeful year for FTD Research, and it’s also been an exciting year for…
Article Lists Ways Researchers Can Involve People with Dementia in Identifying Research Priorities
A research article published in the Journal of the American Geriatrics Society discusses how researchers can better…
AFTD Ambassador Advocates on Behalf of the Older Americans Act
AFTD Ambassador Judy Bearer advocated for the reauthorization of the Older Americans Act (OAA) in a December…
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