The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Advancing Hope: AFTD and Registry Staff Attend International Dementia Conference

AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of July in Toronto, Canada. The conference drew over 19,000 attendees and had a…

Dear HelpLine: AFTD’s Awareness Cards

Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t realize their behavior is part of their condition. How can I support them…

FTD Science Digest: What happens when a Phase 3 clinical trial concludes?

You may know that a number of ongoing clinical trials are evaluating treatments with the potential to slow, or even stop, the progression of FTD. (Some of those trials are…

FTD Research Spotlight: Genetic FTD Trials Update – Approaching a Phase 3 Milestone

The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for a type…

Emma Heming Willis Shares Family Updates on The Oprah Podcast

Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast” yesterday about her family’s journey with FTD. Mrs. Willis is currently making a…

AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview

Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels in cerebrospinal fluid (CSF) can help diagnose FTD in a recent interview with…

Guest Feature: Learning to live with familial FTD

The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate…

California FTD Awareness Week Resolution - FBLI

AFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution

AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s official recognition of FTD Awareness Week 2025. This is California’s second consecutive year…

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