AFTD Webinar: From Symptom Onset to Diagnosis: Improving the FTD Diagnostic Journey
From Symptom Onset to Diagnosis: Improving the FTD Diagnostic Journey FTD’s complex symptomology means it is often misdiagnosed. This webinar will explore what we know about the diagnostic journey by…
Read MoreDetroit Marathon
Two participants in the Detroit Marathon will be adding onto their marathon experiences by fundraising for AFTD’s mission while they train and run in the race. Glenna Sikdar Creek is…
Read MoreLife Time Chicago Half Marathon
Ana Gaither and some members of her family will be running in the 2025 Life Time Chicago Half Marathon this fall in memory of Ana’s aunt Erin Lynch- McNulty who…
Read MoreHood to Coast Relay Race
Elica Sharifnia and her relay team are participating in the race and fundraising in memory of Elica’s father Hamid Sharifnia.
Read MoreJersey Freeze Ice Cream Party
AFTD Advocacy Coordinator Lauren Pelaia is hosting a sweet fundraiser at Jersey Freeze on July 10th. A portion of the sales that day from the ice cream parlor and restaurant…
Read MoreDear HelpLine: Comstock Grants
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more?…
Read MoreAdvancing Hope; AFTD Attends the Tau Global Conference
In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS),…
Read MoreBrain Pathology Consistent with FTD Found in Roughly 35% of Motor Neuron Disease Cases in Recent Study
According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes…
Read MorePromising FTD Gene Therapy from AviadoBio Featured in the UK Guardian
In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101,…
Read MoreFTD Science Digest: Help Advance Science by Joining the Updated FTD Disorders Registry
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than…
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