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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
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News & Events Near You
The Lived Experience of FTD: “Holiday Hacks” That Can Make the Season More Enjoyable
The following guest feature was written by Kevin Rhodes and other members of AFTD’s Persons with FTD Advisory Council. Members of the…
GemVax & KAEL Announces Results from Phase 2 PSP Study
South Korean biopharmaceutical company GemVax & Kael announced the results from its Phase 2 clinical trial of…
AFTD Director of Research Engagement Shana Dodge Presents at 2025 NORD Breakthrough Summit Lightning Round
AFTD Director of Research Engagement Shana Dodge, PhD, presented on an AFTD-hosted industry advisory panel during the…
Dear HelpLine: Sharing the Diagnosis
Dear HelpLine, My wife was diagnosed with FTD this past year and we will be seeing family…
Bobby Kimball, Toto’s Original Lead Singer, Living with FTD
The FTD community extends its heartfelt support to Bobby Kimball, original lead vocalist of the band Toto,…
AFTD Grantee Leads Basic Science Study Exploring Role of Protein in Tau-Based Disorders like CBD
A recent study examines the role of chromogranin A (CgA) in disorders caused by dysfunctional tau protein….
Pave the Path Forward This Giving Tuesday
AFTD Persons with FTD Advisory Council member Sandy Howe and her husband, Dirk, are sharing their story…
Love Will End FTD: Katie Brandt on Caregiving, Loss, and Leading Change
Katie Brandt, an active and longtime AFTD volunteer, was interviewed on the podcast Navigating the World With…
Finding Your Way Through the Holidays with FTD
The holidays can magnify everything about living with FTD, but can also become opportunities to adapt and…
Study Investigates if Clinical PSP Diagnoses Match Neuropathology in a National Dataset
A study published in the medical journal Alzheimer’s & Dementia finds disagreement between progressive supranuclear palsy (PSP)…
