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In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief

When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into…

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Leonard A. Lauder, 1933-2025

Leonard A. Lauder, a legend of the cosmetics industry who invested hundreds of millions of dollars into…

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Photograph of former Rep. Jennifer Wexton

Former U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine 

Jennifer Wexton, a former member of Congress who stepped down after revealing her progressive supranuclear palsy (PSP)…

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Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment

Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and…

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Picture of author Jennifer Levin

Millennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers

When Jennifer N. Levin’s father was diagnosed with progressive supranuclear palsy, she was only 32 and living…

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AFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper

In a May 21 article published in the Charleston Gazette-Mail, AFTD Ambassador Debbie Elkins detailed her family’s…

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Emma Heming Willis Honored with Caregiving Award

Emma Heming Willis was recently honored by Maria Shriver’s Women’s Alzheimer’s Movement (WAM) at Cleveland Clinic, receiving…

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Session Videos from AFTD’s 2025 Education Conference Now Available

Sessions from AFTD’s 2025 Education Conference are now available on our YouTube channel. Whether you missed a…

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N.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry

A bill that would establish a registry of FTD diagnoses in New York State was reintroduced in…

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Statement from The Association for Frontotemporal Degeneration on the Need for Robust and Consistent Medical Research Funding

The Association for Frontotemporal Degeneration (AFTD) continues to urgently advocate for robust and consistent funding for the…

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