What's New
Events
Fighting for the Future: Education and Support for Familial FTD/ALS
AFTD is a bronze-level sponsor of the University of Pennsylvania Frontotemporal Degeneration Center’s virtual conference, “Fighting for the Future: Education and Support for Familial FTD/ALS.” This live event will address…
Spokane, WA Virtual Meet & Greet
Join AFTD Ambassador Joanne Linerud for a Virtual Meet & Greet for the Spokane, WA area. E-meet (via Zoom video conference) others in your area whose lives are affected by…
February 17th Webinar: Brain-Behavior Connections in Frontotemporal Degeneration
The cognitive and behavioral changes experienced in FTD are closely related to the loss of neurons in the frontal and temporal lobes of the brain. Understanding the connection between changes…
February 13th: Midwest Virtual Meet & Greet
Join AFTD Ambassador Deb Scharper for a Midwest Virtual Meet & Greet for IA, MN, SD, and ND. E-meet (via Zoom video conference) others in your area whose lives are…
Dr. Daniel Kaufer Memorial Caregiver Conference
AFTD is a sponsor of the Dementia Alliance of North Carolina’s Inaugural Dr. Daniel Kaufer Memorial Caregiver Conference. This online caregiver conference will focus on awareness, attitude, and action to…
Community Information Session: Learn More About AFTD’s March 5th Externally Led PFDD Meeting
On February 4, AFTD will host an online Community Information Session, providing information and answering questions about the upcoming AFTD-hosted virtual Externally Led Patient Focused Drug Development (EL-PFDD) meeting. The…
With Love 10th Anniversary
AFTD is commemorating the 10th anniversary of our annual With Love campaign this February. During the month-long fundraiser, we encourage you to share your FTD story and how love helped…
Jan. 9 — West Coast Virtual Meet & Greet
Join AFTD Volunteer Maureen Stroka for a West Coast Virtual Meet & Greet for young adults, ages 20 – 45, who have a parent living with FTD. E-meet (via Zoom…
Tangle Syx – 1% for AFTD
Tangle Syx, a sustainable clothing company, is donating one percent of all sales to support AFTD’s mission in honor of founder Alyssa Radcliff’s husband, Chris Radcliff. He was diagnosed with…
East Coast Virtual Meet & Greet
Join AFTD Volunteer Jen Hoar for an East Coast Virtual Meet & Greet for young adults, ages 20 – 45, who have a parent living with FTD. E-meet (via Zoom…
North Carolina Meet & Greet
Join AFTD volunteers Dr.Gerald Lazarus and Chad Thomsen and AFTD board alumnus Paul Lester for a Virtual Meet & Greet for North Carolina. E-meet (via Zoom video conference) others in…
Webinar: Gene Therapy in FTD
Gene therapy is showing promise for treating a wide range of diseases, and related clinical trials are emerging for FTD. This webinar, part of a new Perspectives in FTD Research…
Ellie’s Butterflies
Ellie’s Butterflies is a children’s picture book written by Alecia Smith, described as a “loving story about understanding dementia.” When Alecia’s father was diagnosed with FTD at the age of…
CANCELED: Philadelphia Marathon
The Philadelphia Marathon has been canceled in response to the COVID-19 pandemic. The event has been rescheduled for November 2021. Note: Anyone who was registered on the AFTD-Team for this…
Vermont, New Hampshire & Maine Virtual Meet & Greet
Join AFTD Volunteer Connie Archambault for a Virtual Meet & Greet for Vermont, New Hampshire, and Maine. E-meet (via Zoom video conference) others in your area whose lives are affected…
2nd Annual PAC Conference
AFTD is a co-sponsor of the second annual Positive Approach to Care Conference, which will be held virtually via Zoom. The theme of this year’s conference is Living Under the…
Webinar: Living the Grief of FTD — The Winding Paths of Loss, Love, and Resilience
In FTD, losses begin with the first presenting symptoms. Even before a diagnosis, persons diagnosed and their families experience tremendous fear and worry — which, over time, develop into feelings…
Webinar: FTD and Genetic Testing – A Practical Approach
About 40% of people affected by FTD have a family history with at least one other relative diagnosed with some form of neurodegenerative disease. Knowing as much as you can…
Jersey Shore Area Meet & Greet
Join AFTD Volunteer Stuart Waldman for a Virtual Meet & Greet for the Central NJ and Jersey Shore areas. E-meet (via Zoom video conference) others in your area whose lives…
The Shawnee 50 Mile Trail Run
Paul Petras will be participating in the Shawnee 50 Mile Trail Run on October 10, 2020 in honor of his girlfriend, Serina Cline’s, father, who was diagnosed with FTD and…
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