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FTD in the News
Single mother spreads awareness after her husband dies of rare disease
As Rare Disease Day 2015 nears, The Boston Globe interviewed Katie Brandt, who is AFTD’s New England volunteer coordinator…
Research Study seeking volunteers diagnosed ALS with FTD
A long term research study sponsored by Northwestern University, Chicago on the Genetics of Familial and Sporadic ALS,…
Clinical Trial for PGRN Mutation Carriers
FORUM Pharmaceuticals announces dosing of the first patient in a clinical trial to evaluate FORUM’s investigational therapy…
“Still Alice” Rings True
The Philadelphia ABC affiliate produced a segment about the struggles associated with early onset dementia featuring a…
Billionaire Invests in Brain Research
Diagnosed with a degenerative brain disease in 2009, Richard Rainwater “has poured more than $50 million into…
Rare dementia ravages people in midlife
AFTD Executive Director Susan Dickinson talks to a reporter from the Delphos Herald about the hallmark characteristics…
Feature Uses NIH Announcement as Springboard for Raising Awareness
In addition to publicizing the investment by the NIH in FTD research, this Healthline article also provides a…
Reporter Gets Personal: “Why FTD Is So Hard to Talk About – My Dad’s Story”
Freelance writer David Heitz, a news reporter for Healthline and contributor to the online Healthline Contributors, shares…
Progranulin-Boosting Drug Moves into Phase 2 for Frontotemporal Dementia
A drug being tested for cases of FTD with a progranulin mutation moves into phase 2. Read the…
Amid loss, Minn. author Nancy Carlson still makes children’s books
Author Nancy Carlson describes her journey caring for her husband, who has FTD. Read the article here.
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