AFTD Webinar: From Symptom Onset to Diagnosis — Improving the FTD Diagnostic Journey

FTD’s complex symptomology means it is often misdiagnosed. This webinar explores what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early symptoms, barriers to timely diagnosis, and opportunities to improve detection and referral pathways. A leading FTD expert, Dr. David Irwin, discusses the key components of…

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Late FTD Advocate Susan Suchan Spotlighted in New Documentary

Susan, a new full-length documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream. The film’s subject, Susan Suchan, was a tireless advocate on behalf of FTD awareness before her 2018 death, at age 60. Initially misdiagnosed with early-onset Alzheimer’s disease, Susan eventually learned…

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Dear HelpLine: Resources for Genetic FTD

Graphic Text: Dear HelpLine - Resources for Genetic FTD. | Background: A doctor consults with a patient

Dear HelpLine, I am 25 years old and I just learned my dad’s FTD is genetic. I’m planning to get married soon. Now that I know I may also be at risk, I don’t know where to begin. When a loved one is diagnosed with FTD, relatives often wonder if they face the same risk.…

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Advancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients

Graphic Text: Advancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients | Photos of AFTD grant recipients

Made possible thanks to the generous support of the Holloway Family Fund, AFTD’s Holloway Fellowships support the next generation of FTD researchers by providing two years of funding for innovative projects during their early career stages. Please join us in congratulating the most recent awardees! 2025 AFTD Holloway Postdoctoral Fellowships Funding:$120,000 over two years Funded solely…

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