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  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Coordinating Care
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
    • Persons With FTD Advisory Council
    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
    • News
      • FTD in the News
      • Events
      • Press Releases
      • Videos
      • Webinars
    • Publications
      • AFTD Insights
      • Help & Hope
      • Partners in FTD Care
    • Media
      • Contact our Newsroom
  • Search

Advancing Hope: AFTD Holds 2023 Holloway Summit Meeting on Biomarkers for FTD

By Mike Mooney | January 5, 2024 | 0
Graphic: Advancing Hope - AFTD Holds 2023 Holloway Summit Meeting on Biomarkers for FTD

The second annual AFTD Holloway Summit, focused on biomarkers for FTD, was held from November 30 to December 1 in Miami Beach, FL. More than 50 attendees from academia, industry,…

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Dear HelpLine: Dealing With Genetic Uncertainty

By Mike Mooney | January 5, 2024 | 0
Dear HelpLine: Dealing With Genetic Uncertainty

Dear HelpLine, Each time I visit home for the holidays and see firsthand how FTD has affected my parent, my anxiety increases. Is it normal to worry that other family…

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AFTD and ADDF Extend Treat FTD Fund Program Through 2035

By Mike Mooney | January 4, 2024 | 0
Graphic: AFTD and ADDF Extend Treat FTD Fund Through 2035

AFTD and the Alzheimer’s Drug Discovery Foundation (ADDF) have committed to extending the Treat FTD Fund program through 2035, providing an additional ten years of support to accelerate treatment development…

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Gene Therapy for FTD: What Do I Need to Know?

By Matt Ozga | January 3, 2024 | 0

In the last several years, new clinical trials have begun for drugs that can potentially slow or stop the progression of FTD caused by specific genes. Gene therapy and gene…

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The Lived Experience of FTD: Grief on the FTD Journey

By Mike Mooney | December 29, 2023 | 0
Graphic: The Lived Experience of FTD - Grief on the FTD Journey

The following article was written by members of AFTD’s Persons with FTD Advisory Council, who work to ensure that the insights and voices of people living with FTD help guide…

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Passage Bio Announces Hopeful Initial Data from Phase 1/2 Clinical Trial

By Mike Mooney | December 22, 2023 | 0
Graphic: Passage Bio announces hopeful initial data from phase 1/2 clinical trial

Passage Bio released promising preliminary results from its phase 1/2 clinical trial evaluating an experimental treatment for FTD cases caused by a GRN genetic mutation (FTD-GRN). The “upliFT-D” trial is…

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