March 13, 2025: Northern Fort Myers, FL In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore and starting at 10:00 a.m. on Thursday, March 13. The event will be held at Palmetto Landing Amenities Center and Clubhouse, located at 44304 Palm Frond Drive in Punta Gorda. Email…
Read MoreNorthern Fort Myers, FL In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Julie Moore. Email Julie at juliemoore2016@gmail.com to RSVP for this event. Download this flyer to learn more.
Read MoreFTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research
An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways to address these obstacles in order to further diversity in FTD science globally. The article was a collaborative effort by FTD experts worldwide through the…
Read MoreThe Lived Experience of FTD: FTD and Intimacy
In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes about intimacy and FTD. Intimacy can be an uncomfortable word. Years ago, when my husband and I were in premarital counseling, the therapist referred to it as “conjugation.” At the time, I had no idea what he meant;…
Read MoreVesper Bio Clinical Trial for FTD-GRN Enters Phase Ib/IIa
Danish biotechnology company Vesper Bio announced in January that its clinical trial for a potentially disease-modifying drug for FTD-GRN is proceeding to phase Ib/IIa. In FTD caused by an inherited GRN mutation, the production of the neuroprotective protein progranulin is suppressed. The protein sortilin contributes to the loss of progranulin by binding to it and…
Read MoreDear HelpLine: Home and Community Care Options
Dear HelpLine, My spouse has FTD. I have been caring for them in our home, and I’ve reached the point where I need more help. But I don’t even know where to begin to find what we need. Do you have any advice? Obtaining effective home and community-based FTD care services can be daunting. Know…
Read MoreDueling Pianos for AFTD
Join us at Dueling Pianos for AFTD, a fundraising and awareness event hosted by AFTD volunteers Guy Margolin and Lauren Pelaia. This event is sponsored by the Flying Ivories and the LVW Pickleball Club. All tickets MUST be purchased in advance. Seating is limited so buy early to reserve your spot! For more specifics (including…
Read MorePenn FTD Center Annual Familial Conference: Uncovering the Genetics of FTD/ALS
AFTD is a bronze-level sponsor of the 2025 Penn FTD Center Annual Familial Conference, which will focus on the genetics of FTD/ALS. It will address topics for people living with, or at risk of, a familial and/or genetic form of FTD/ALS. Attendees will have the chance to hear from genetic counselors, neurologists, and social workers…
Read MoreFrontotemporal Lobar Degeneration: Moving Forward
Frontotemporal dementias are less well known than Alzheimer’s disease but account for over half of the cases of dementia in people younger than 65 years. The last few years have witnessed rapid developments in the understanding of this group of diseases, particularly in terms of their genetic underpinnings and imaging characteristics. The 14th Annual Nantz…
Read MoreThe Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD
When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt end of one’s career can cause depression (our jobs contribute significantly to our sense of self-worth) and stress (how will I pay my bills now?).…
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