AFTD Webinar: How to Find a Genetic Counselor
FTD has a stronger genetic risk than other dementias. While not all FTD is inherited, understanding whether the FTD in your family is genetic is crucial: it can confirm the diagnosis, inform care choices, and help you anticipate future care needs, plan financially, and allow relatives to make informed decisions around family and future planning.…
Read MoreRegional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. This Meet & Greet will provide an opportunity to talk with others who…
Read MoreRegional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. RSVP by emailing Julie at m13family at gmail.com. We encourage you to download this flyer and…
Read MoreReview Article Explores Lived Experiences of Ceasing Driving Due to Young-Onset Dementia
A review article published in the journal BMC Geriatrics explores and summarizes the lived experiences of ceasing driving due to young-onset dementias like FTD, finding that families are often left to navigate the associated challenges on their own. Driving Often Cessation Occurs During Peak of Family Life and Career Dementias like FTD are progressive conditions…
Read MoreHelp & Hope: Join AFTD’s 2025 Education Conference Via Zoom on May 2
The 2025 AFTD Education Conference will be livestreamed via Zoom on May 2, offering a valuable opportunity to connect with others who understand, learn from FTD experts, and engage with AFTD’s community. As in the past few years, the 2025 Education Conference will be a hybrid event: attendees can either join us online or in…
Read MoreThe 20th Annual GFS Memorial Golf Outing
The 20th annual GFS Memorial Golf Outing will be held on August 2, 2025 at the Lost Nation Golf Course in Willoughby, OH. The event will feature a shotgun start, four person scramble format, closest to the pin and most accurate drive contests, door prizes, a raffle and steak dinner. All proceeds to benefit AFTD’s…
Read More“Inside Edition” Highlights Upcoming Documentary About a Family’s FTD Journey
A recent episode of Inside Edition explores the experiences of the late Susan Suchan and her family as they navigated her symptoms and eventual FTD diagnosis. The family’s FTD journey is the subject of the documentary “Susan,” which will debut later this year. Seven Years of Uncertainty Suchan’s daughter Heather Miller told Inside Edition that…
Read MorePerspectives in FTD Research Webinar: AFTD and You – Partners in Drug Development
How does a great scientific idea become an effective treatment? It’s a long and complicated process! Drug development involves many key players, including researchers, companies, regulators, funders, patient advocacy organizations like AFTD and, importantly, community members with lived experience of FTD. The field of FTD has made exciting progress in the past decade, with treatments…
Read MoreStatement from The Association for Frontotemporal Degeneration on the Need for Robust and Consistent Medical Research Funding
The Association for Frontotemporal Degeneration (AFTD) continues to urgently advocate for robust and consistent funding for the National Institutes of Health (NIH) in FY 2026 appropriations. Despite being the most common dementia diagnosed in people under 60 years, FTD currently has no effective treatment to prevent its onset and slow its progression. Families and their…
Read MoreFTD Science Digest: Making FTD Visible – The Critical Role of Biomarkers in Diagnosis and Treatment
Biomarkers are critical to understanding and treating any disease. A biomarker is something measurable in the body that can indicate a disease’s presence and severity. High blood pressure, for example, is a biomarker that can indicate whether a person has heart disease and how serious it is: the higher the blood pressure numbers, the more…
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