AFTD CEO Susan Dickinson to Retire in May 2026; AFTD Board Leading Search for Successor
When Susan L-J Dickinson was hired to lead AFTD, the organization had just two other part-time employees. Much of its day-to-day work was done by a small group of passionate volunteers, including AFTD’s all-volunteer Board of Directors and Medical Advisory Council. Its budget was $400,000. With Ms. Dickinson at the helm, AFTD has grown into…
Read MoreUnderstanding Dementia with a Focus on Frontotemporal Degeneration (FTD)
AFTD Ambassador Dawn O’Gara will be joining representatives of the Alzheimer’s Association to hold a virtual presentation on FTD and Alzheimer’s disease on Tuesday, August 19, 2025 from 12:00 PM – 1:00 PM EDT. The presentation will provide participants with the opportunity to learn about the signs and symptoms of FTD and Alzheimer’s, and the resources available through…
Read MoreIn-Person Meet & Greet for Individuals on the FTD Journey
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Valdosta, GA., hosted by Persons with FTD Advisory Council member Chris Tann and Dr. Debra Tann on September 6th. RSVP by calling or texting Dr. Debra Tann at 229-415-3333 You don’t have to face FTD alone.…
Read MoreTips & Advice: Brain Health and FTD
While no treatments have yet been approved for any type of FTD, emerging research is beginning to suggest that carriers of FTD-causing gene variants may be able to slow its progression by engaging in certain brain-healthy activities. But there is much we still don’t know about overall brain health and its relationship with FTD risk…
Read MoreIn-Person Meet & Greet for People Impacted by FTD in Federal Way, WA, and Surrounding Areas
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Federal Way, WA, hosted by AFTD Ambassador Joanne Linerud and volunteers Steve Zamberlin and Karin Miller, on September 6, 2025. Grilled burgers will be provided – please bring a side dish to share! RSVP by emailing…
Read MoreGenetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue
A viewpoint article published in the medical journal Neurology argues that genetic counseling and testing should be offered to everyone diagnosed with FTD, underscoring the increasing number of trials for gene-based therapies. Co-authors of the article include AFTD Manager of Genetic Initiatives Kim Jenny, MS, LCGC; Board member Jill S. Goldman, MS, MPhil, CGC; and…
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