Tips & Advice: Brain Health and FTD
While no treatments have yet been approved for any type of FTD, emerging research is beginning to suggest that carriers of FTD-causing gene variants may be able to slow its progression by engaging in certain brain-healthy activities. But there is much we still don’t know about overall brain health and its relationship with FTD risk…
Read MoreIn-Person Meet & Greet for People Impacted by FTD in Federal Way, WA, and Surrounding Areas
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Federal Way, WA, hosted by AFTD Ambassador Joanne Linerud and volunteers Steve Zamberlin and Karin Miller, on September 6, 2025. Grilled burgers will be provided – please bring a side dish to share! RSVP by emailing…
Read MoreGenetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue
A viewpoint article published in the medical journal Neurology argues that genetic counseling and testing should be offered to everyone diagnosed with FTD, underscoring the increasing number of trials for gene-based therapies. Co-authors of the article include AFTD Manager of Genetic Initiatives Kim Jenny, MS, LCGC; Board member Jill S. Goldman, MS, MPhil, CGC; and…
Read More“Alzheimer’s & Dementia” Summarizes Inaugural Holloway Summit’s Discussions on Digital Health Technologies for FTD
An article published in the journal Alzheimer’s & Dementia arose from AFTD’s inaugural Holloway Summit in 2022, which focused on digital health technologies (DHTs) and how they can help diagnose FTD. DHTs use advanced computing platforms and sensors to quantify disease progression and assess clinical outcomes. The article – co-written by AFTD’s Dr. Amanda Gleixner,…
Read MoreUnidos en el camino: reunión de personas confrontando la demencia frontotemporal 2025
Únase y aprenda de otras personas que entienden y han vivido el camino difícil de la DFT (degeneración frontotemporal) en este evento virtual. Este evento es específicamente para personas hispanohablantes y las dificultades que la comunidad latina pueda encontrar en particular aquí en este país. Les daremos la bienvenida además de obtener apoyo y recursos…
Read MoreDuke Caregiver Community Event
Are you a caregiver providing support to a loved one? The Duke Caregiver Community Event, taking place in Durham, N.C., offers insights from experts and ways to connect with services and support systems. Find answers and resources that can help you navigate this journey. AFTD volunteers will be staffing an information table during this event.…
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