VA Caregiver Support Annual Summit
AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled “Beyond…
Read MoreAprinoia Therapeutics Receives Fast Track Designation for PET Tracer for PSP Diagnosis
Biopharmaceutical company Aprionoia Therapeutics announced that it has received an FDA Fast Track Designation for an imaging tracer used to diagnose progressive supranuclear palsy (PSP), an FTD disorder that primarily…
Read MoreDear HelpLine – Support for Young Adults
Dear HelpLine, My mom was diagnosed with FTD and I’m looking to connect with other young adults caring for a parent with FTD. Without support, I am overwhelmed and feel…
Read MoreAdvancing Hope: AFTD Joins National Institutes of Health AMP ALS Initiative as Partner
AFTD is joining fellow nonprofits, biopharmaceutical companies, and the U.S. Food and Drug Administration (FDA) as partners in the Accelerating Medicines Partnership for ALS (AMP ALS) initiative. AFTD’s participation in…
Read MoreNew York FTD Registry Bill Passes State Senate
A bill establishing a registry of FTD diagnoses in New York State unanimously passed the state Senate on June 5. Sponsored by Sen. Michelle Hinchey, Senate Bill 7874 requires healthcare…
Read MoreAFTD Board Member Kristin Holloway Tells Her FTD Story to Self Magazine
AFTD Board member Kristin Holloway shared her experiences as a care partner for her husband, Lee, in an article published by Self magazine on May 17. Holloway began noticing alarming…
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