AFTD Grantee Study Assesses Protein Changes Which Could Help Track FTD Severity
A study published in Nature Aging looked at a large number of proteins in cerebrospinal fluid (CSF) to see if combinations of changes in these proteins could be used for indicating severity or presence of frontotemporal dementia (FTD) in the future. The research was led by Dr. Rowan Saloner, a current AFTD grant recipient, and…
Read MoreLate FTD Advocate Susan Suchan Spotlighted in New Documentary
Susan, a new full-length documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream. The film’s subject, Susan Suchan, was a tireless advocate on behalf of FTD awareness before her 2018 death, at age 60. Initially misdiagnosed with early-onset Alzheimer’s disease, Susan eventually learned…
Read MoreDear HelpLine: Resources for Genetic FTD
Dear HelpLine, I am 25 years old and I just learned my dad’s FTD is genetic. I’m planning to get married soon. Now that I know I may also be at risk, I don’t know where to begin. When a loved one is diagnosed with FTD, relatives often wonder if they face the same risk.…
Read MoreAdvancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients
Made possible thanks to the generous support of the Holloway Family Fund, AFTD’s Holloway Fellowships support the next generation of FTD researchers by providing two years of funding for innovative projects during their early career stages. Please join us in congratulating the most recent awardees! 2025 AFTD Holloway Postdoctoral Fellowships Funding:$120,000 over two years Funded solely…
Read MoreAviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview
AviadoBio CEO Lisa Deschamps and Astellas senior vice president Richard Wilson discussed the ASPIRE-FTD clinical trial for FTD-GRN, challenges with the development and potential distribution of the AVB-101 gene therapy, and the motivations for their work in an interview with Cell & Gene. Collaboration Helps Overcome Challenges with Gene Therapy Development While acknowledging that gene…
Read MoreAFTD Founder Helen-Ann Comstock, 1933-2025
Helen-Ann Comstock, who founded AFTD in 2002 to ensure that no other family would have to endure FTD without adequate resources, information, and support, died on July 30. She was 92. Following her husband’s FTD journey – a painful, confusing, lonely ordeal – Ms. Comstock took the lessons she learned and used them to create…
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