Guest Feature: Learning to live with familial FTD
The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate for FTD and ALS research. On her blog, Both Things Are True, and her Instagram, she writes about grief, joy, and hope. The summer before…
Read MoreAFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution
AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s official recognition of FTD Awareness Week 2025. This is California’s second consecutive year passing a resolution to mark FTD Awareness Week. It joins 19 other states that have passed FTD Awareness Week resolutions and/or proclamations. Last year, a…
Read MoreEmma Heming Willis Interviewed by Diane Sawyer in Prime-Time Special
Emma Heming Willis was interviewed Tuesday night, August 26, on “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” sharing her family’s experience of living with FTD. In a moving discussion, Mrs. Willis talked about the onset of symptoms in her husband, the difficulty of getting a diagnosis, explaining the disease to…
Read MoreBook About Family’s FTD Journey Helps Raise Funds for AFTD’s Mission
“No Fault of His Own,” a novel released this summer, was the focus of a recent AFTD fundraiser organized by its author Gina Biskupic, a speech and language pathologist and newly minted FTD volunteer. The family drama is inspired by true events, detailing the story of a man named Geoff and his wife, Karly, as…
Read MoreThe Lived Experience of FTD: Talk Therapy in FTD – Risks and Benefits
The following article was written by Anne Fargusson, RN, a member of AFTD Persons with FTD Advisory Council. You can learn more about Anne and her colleagues by visiting the council’s web page. Most persons diagnosed with FTD have encountered some form of talk therapy, even before they got diagnosed. Years ago, for example –…
Read MoreAn Evening for Caregivers
AFTD is attending An Evening for Caregivers, a special event for caregivers featuring Emma Heming Willis in conversation with Anderson Cooper. Panel discussions featuring caregiving experts will kick off the event, providing attendees with resources and information that can make a positive difference at all steps of the caregiving journey. AFTD will have an information…
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