June 15, 2024: In-Person Meet & Greet in Richmond, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library (1200 N. 25th Street). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening…
Read MoreRichmond, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about this event, as well as an in-person Meet & Greet happening…
Read MoreJune 19, 2024: New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19, from 6:00 to 7:30 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this…
Read MoreNew York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this flyer to…
Read MoreStudy Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD
In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can influence the risk and severity of FTD. People who have an inherited genetic variant in the GRN gene must contend with a significantly elevated risk…
Read MoreN.Y. State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry
New York State Senator Michelle Hinchey introduced and sponsored a bill to the state Senate that, if approved, would create a statewide registry of FTD diagnoses. Sen. Hinchey announced the bill on May 15 at the state capitol building in Albany, joined by AFTD CEO Susan L-J Dickinson, Emma Heming Willis, and AFTD volunteers, advocates,…
Read MoreHope Rising Benefit Honors Dr. Bruce Miller, Raises $1.9 Million for AFTD’s Mission
The eighth annual AFTD Hope Rising Benefit, held April 4 at New York City’s Ziegfeld Ballroom, raised more than $1.9 million to support AFTD’s mission of helping those affected by FTD and driving research toward a cure. Bruce Miller, MD, the director of the Memory and Aging Center at the University of California, San Francisco,…
Read MoreNew York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry
ALBANY, N.Y. — Today, New York State Senator Michelle Hinchey unveiled legislation (S7874/A9938) to establish the country’s first statewide Frontotemporal Degeneration (FTD) Research Registry. The registry would help educate doctors on FTD — among the most common and yet little-understood forms of dementia — provide insight into the number of FTD diagnoses across New York,…
Read MoreNational Meet & Greet for LGBTQIA+ Adults Confronting FTD
LGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access resources and psychosocial support for care partners while navigating the FTD journey, with people who understand their lived experiences. AFTD will host a national, virtual…
Read MoreNational Meet & Greet for College-Aged Adults Confronting FTD
AFTD will host a national, virtual Meet & Greet on June 15 for those aged 17-26 who live with and help care for a person living with FTD. We will discuss some of the particular struggles for those of us in this age group and also introduce a new National Support Group for Young Adult…
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