Session Videos Now Available from AFTD 2024 Education Conference

By Mike Mooney | May 31, 2024 |
Graphic: Session Videos Now Available from AFTD's 2024 Education Conference

Videos from the AFTD 2024 Education Conference are now available on AFTD’s YouTube channel. Whether you were unable to join us in Houston or online, or simply want to watch a presentation you missed, you can now watch a range of sessions highlighting the lived experience of FTD, the latest updates on research, and other important…

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California’s First Frontotemporal Degeneration Awareness Resolution Passed at State Capitol by Assembly and Senate

By Matt Ozga | May 31, 2024 |

Emma Heming Willis Joins The Association for Frontotemporal Degeneration at California’s Capitol to Mark Watershed Moment in Dementia Awareness SACRAMENTO, CA. – On Thursday, The Association for Frontotemporal Degeneration (AFTD) and Emma Heming Willis, wife of actor Bruce Willis, joined state lawmakers to mark California’s first resolution in support of Frontotemporal Degeneration Awareness (FTD) Week.…

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FTD & ALS: A Collaborative Approach to Diagnosis and Care

By Matt Ozga | May 24, 2024 |

We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions can appear without a known genetic cause. In this AFTD Healthcare Professional Webinar, neurologists from Massachusetts General Hospital who specialize in FTD and ALS will…

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Advancing Hope: AFTD Attends 2024 Target ALS Annual Meeting

By Mike Mooney | May 24, 2024 |
Target ALS logo

AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific stakeholders from academia, industry, venture capital firms, nonprofit organizations and individuals with lived experience of the disease. Researchers utilized the forum to share scientific breakthroughs…

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Help & Hope: The new FTD Disorders Registry Platform is Now Live!

By Mike Mooney | May 24, 2024 |
Graphic: The new FTD Disorders Registry Platform is Now Live

The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as a key participant in the quest to end FTD disorders. By providing vital information about your lived experience of FTD disorders, you play a role…

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The Electric Merch Co.

By Bridget Graham | May 24, 2024 |

Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…

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June 15, 2024: In-Person Meet & Greet in Newport News, Va.

By Matt Ozga | May 23, 2024 |

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News (366 Deshazor Drive). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier…

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Newport News, Va. Meet & Greet

By Matt Ozga | May 23, 2024 |

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier the same day.

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