The Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD
When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt end of one’s career can cause depression (our jobs contribute significantly to our sense of self-worth) and stress (how will I pay my bills now?).…
Read MoreRemember Me Podcast Discusses Grief with AFTD Staff in Recent Episode
In a special bonus episode of the “Remember Me” podcast, AFTD Support & Education Director Esther Kane, MSN, RN-CDP, and Support Services Manager Sarah Lopata, MS joined hosts Rachael Martinez and Maria Kent Beers, both former FTD caregivers, to talk about grief and the FTD journey. Everyone Experiences FTD, and Grief, Differently FTD disorders are…
Read MoreAFTD Healthcare Professional Webinar: At the Intersection of FTD and the Law
FTD can present with executive dysfunction, impulsivity, loss of empathy, apathy and disinhibition. At times, these symptoms can lead to interactions with police, whether responding to an incident at home or in the community resulting in an arrest. This webinar will highlight what we know about the incidence of these interactions, discuss what FTD…
Read MoreAFTD Webinar: Paving the Path Forward — Advancing AFTD’s Public Policy Priorities
Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this webinar, the AFTD advocacy team and experts at the Washington, DC lobbying firm Innovation Policy Solutions explain how you can advance these and other critical…
Read MoreUpcoming UCSF Trial to Evaluate Effectiveness of Three Drugs for PSP
An upcoming clinical trial conducted by the University of California, San Francisco (UCSF) will simultaneously evaluate multiple drugs to determine their effectiveness against progressive supranuclear palsy. The trial has been designed with an emphasis on diverse enrollment and will offer financial support to participants. The study is being funded by a five-year grant of up…
Read MoreFebruary 22, 2025: In-Person Meet & Greet in Sparks, Nev.
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks (300 Howard Drive), starting at 10:00 a.m. If you are unable to walk, reach out to Scott at soxarart@theaftd.org to find a better way to connect. Download…
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