Advancing Hope: AFTD Attends 2024 Target ALS Annual Meeting
AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific stakeholders from academia, industry, venture capital firms, nonprofit organizations and individuals with lived experience of the disease. Researchers utilized the forum to share scientific breakthroughs…
Read MoreHelp & Hope: The new FTD Disorders Registry Platform is Now Live!
The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as a key participant in the quest to end FTD disorders. By providing vital information about your lived experience of FTD disorders, you play a role…
Read MoreThe Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
Read MoreJune 15, 2024: In-Person Meet & Greet in Newport News, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News (366 Deshazor Drive). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier…
Read MoreNewport News, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier the same day.
Read MoreJune 15, 2024: In-Person Meet & Greet in Richmond, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library (1200 N. 25th Street). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening…
Read MoreRichmond, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about this event, as well as an in-person Meet & Greet happening…
Read MoreJune 19, 2024: New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19, from 6:00 to 7:30 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this…
Read MoreNew York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this flyer to…
Read MoreStudy Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD
In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can influence the risk and severity of FTD. People who have an inherited genetic variant in the GRN gene must contend with a significantly elevated risk…
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