Unidos en el camino: reunión de personas confrontando la demencia frontotemporal
Únase y aprenda de otras personas que entienden y han vivido el camino difícil de la DFT (degeneración frontotemporal) en este evento virtual. Este evento es específicamente para personas hispanohablantes y las dificultades que la comunidad latina pueda encontrar en particular aquí en este país. Les daremos la bienvenida además de obtener apoyo y recursos…
Read MoreThe Lived Experience of FTD: Overeating and Other Temptations in FTD
By Anne Fargusson, RN, AFTD Persons with FTD Advisory Council Among the hallmark symptoms of FTD is an oral fixation, which can lead to overeating. FTD may also cause a craving for sweets: candy, cake, pie, ice cream. Combined, these two tendencies can lead to significant weight gain and a lower quality of life. Some…
Read MoreAdvancing Hope: AFTD Hosts 2025 Holloway Summit
Can the risk of developing FTD be changed by environmental exposures, lifestyle, diet, and other factors? Are the genetic risks fully understood? These questions are regularly asked by affected families and at-risk individuals. On January 22-24, 2025, the third annual AFTD Holloway Summit convened academic scientists, nonprofit partners, persons with lived experience, and AFTD staff…
Read MorePair of Studies Make Significant Findings in Search for FTD Biomarkers
Two recent studies on proteins and FTD are helping to lay the foundation for the potential development of diagnostic and prognostic FTD biomarkers, a Feb. 9 Alzforum post reported. Studies Identify Relationships Between Certain Proteins and FTD Disorders Getting an FTD diagnosis is an extensive process that can involve multiple rounds of cognitive or behavioral…
Read MoreFTD Research Spotlight: Making FTD Visible by Investing in Diagnostic Biomarkers: A New Funding Opportunity
FTD researchers know the importance of identifying and validating usable biomarkers for FTD – and just how complex these tasks are. FTD-specific biomarkers could help to achieve many unmet needs for families and researchers: improved diagnostic accuracy and sensitivity, improved prognosis prediction, identification of which people suffer from which types of pathology, and accelerated drug…
Read MoreDear HelpLine: Looking for Support Options
Dear HelpLine, My brother was diagnosed with FTD. I see that AFTD offers support groups, but I’m not sure who they are for, or which one is right for me. Can you help me understand my options? AFTD strives to support FTD care partners, the close family members and friends who provide care to persons…
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