New York State FTD Registry Bill Signed into Law
KING OF PRUSSIA, Pa., Oct. 20, 2025 — New York State Governor Kathy Hochul on Friday signed into law a bill creating the nation’s first state-level frontotemporal dementia (FTD) registry. The New York registry—championed by Sen. Michelle Hinchey and Asm. Amy Paulin in the legislature—will ensure more robust information on the rate of FTD diagnoses in the…
Read MoreAdvancing Hope: AFTD Convenes 3rd Annual FTD Research Roundtable Meeting
AFTD’s 2025 FTD Research Roundtable, in-person meeting, was held September 15-17 in Arlington, Virginia. Approximately 100 scientific stakeholders from academia, the biopharmaceutical industry, government & regulatory representatives, nonprofit partners, persons with lived experience of the disease, AFTD staff & Board, and others came together with the shared interest in accelerating FTD drug development. The meeting…
Read MoreEpilepsy More Common in FTD than Alzheimer’s, Study Finds
Epilepsy symptoms and the prescription of antiseizure medications are more common in FTD than Alzheimer’s disease, as reported in a study published in JAMA Neurology. The study sheds light on the risk of these symptoms in FTD and the potential overlap of the biological mechanisms of FTD and epilepsy. Epilepsy in FTD Can Begin Years…
Read MoreSubaru Share the Love Event 2025
Scott Campbell, owner of Subaru of Muskegon, MI has once again designated AFTD as one of their Hometown Charities for the 2025 Subaru Share the Love Event! From November 2025 to January 2026, the dealership will pledge a donation for every new car they sell or lease, and every routine service visit to be divided…
Read MoreAFTD Webinar: The Lived Experience with FTD: The Road to an FTD Diagnosis
While awareness of FTD disorders is increasing, many people still face a lengthy and complicated path to receiving a diagnosis. In this webinar, presenters will share their personal journeys to diagnosis, highlighting the obstacles they encountered and how they overcame them. Their experiences will provide valuable insight and encouragement for those currently seeking answers.…
Read MoreAdvancing Hope – AFTD Staff Attend 2025 ALS Nexus in Dallas
Amanda Gleixner, PhD, attended the Amyotrophic Lateral Sclerosis (ALS) Nexus, held in Dallas, TX in August. The ALS Nexus is an annual conference hosted by the ALS Association which brings together researchers, clinicians, people with ALS, caregivers, advocates, and industry collaborators to collaborate and accelerate progress toward making ALS a livable disease and eventually finding…
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