AviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview
AviadoBio CEO Lisa Deschamps and Astellas senior vice president Richard Wilson discussed the ASPIRE-FTD clinical trial for FTD-GRN, challenges with the development and potential distribution of the AVB-101 gene therapy, and the motivations for their work in an interview with Cell & Gene. Collaboration Helps Overcome Challenges with Gene Therapy Development While acknowledging that gene…
Read MoreAFTD Founder Helen-Ann Comstock, 1933-2025
Helen-Ann Comstock, who founded AFTD in 2002 to ensure that no other family would have to endure FTD without adequate resources, information, and support, died on July 30. She was 92. Following her husband’s FTD journey – a painful, confusing, lonely ordeal – Ms. Comstock took the lessons she learned and used them to create…
Read MoreThe Road to Timely and Accurate FTD Diagnosis
Accurate, early FTD diagnosis is crucial – for appropriate care, improved quality of life and disease management, adequate support for caregivers, better informed decisions around family planning, and access to clinical trial participation. But because FTD comprises a group of disorders, many of whose symptoms overlap with other neuropsychiatric and neurodegenerative conditions, FTD can be…
Read MoreAugust 23, 2025: In-Person Meet & Greet in Sparks, Nev.
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks (300 Howard Drive), starting at 9:15 a.m. To RSVP, email Scott at soxarart@theaftd.org. Download this flyer to learn more.
Read MoreSparks, Nev. In-Person Meet & Greet
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks starting at 9:15 a.m. To RSVP, email Scott at soxarart@theaftd.org. Download this flyer to learn more.
Read MoreAFTD Webinar: Sharing Your Story to Make a Difference — How to Connect with Legislators and Create Change
Cuts to federal programs are threatening the support systems that people living with FTD and their families rely on. Now more than ever, your voice matters. In this AFTD Advocacy Webinar, you’ll learn how to share your FTD journey with legislators in a way that drives real change. We’ll walk you through how to prepare…
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