In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief
When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart recently appeared on Washoe Life, a podcast produced in Washoe Valley, Nev., to speak about the deep fulfillment he finds in creating the support network…
Read MoreThe Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD
In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31, and Cosmo Hinsman, 26, discussed the devastating impact of genetic FTD on their family, and how their lives changed with the knowledge that they, too, carry the MAPT gene mutation, one of the three common genetic variants associated…
Read More2025 Fundraiser for the AFTD
The Gary FUB Team is hosting their 7th annual Fundraiser for AFTD, to be held at the Hutton House in Medicine Lake, MN. The event will include guest speaker Dr. Vijay Ramanen, heartfelt testimonies from local FTD caregiver/family members, a raffle and silent auction, buffet dinner, and live music! You can buy tickets at https://garysfubteam.simpletix.com/.
Read MoreAFTD Webinar: From Symptom Onset to Diagnosis: Improving the FTD Diagnostic Journey
From Symptom Onset to Diagnosis: Improving the FTD Diagnostic Journey FTD’s complex symptomology means it is often misdiagnosed. This webinar will explore what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early symptoms, barriers to timely diagnosis, and opportunities to improve detection and referral pathways. A…
Read MoreDetroit Marathon
Two participants in the Detroit Marathon will be adding onto their marathon experiences by fundraising for AFTD’s mission while they train and run in the race. Glenna Sikdar Creek is running in honor of her mother Carla who is currently living with FTD and Kelly Collins is also running in honor of her mother who…
Read MoreLife Time Chicago Half Marathon
Ana Gaither and some members of her family will be running in the 2025 Life Time Chicago Half Marathon this fall in memory of Ana’s aunt Erin Lynch- McNulty who was diagnosed with FTD and recently passed away.
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